CFFC Facebook Posts – July 2019 – Part 2
07/16/2019 – Different CFTR Potentiators Bind to Same Flexible Spot on Protein, Study Finds –This study looked at how drugs like Kalydeco actually work which could lead to the development […]
CF Foundation 2019 CF Health Insurance Survey
The Cystic Fibrosis Foundation is conducting a follow up to last year’s survey on health insurance concerns in the CF community. Here is the text of the announcement. Last year […]
CFFC Annual Financial Report for 2018-19
The results of our operations for the 2018-19 fiscal year, which ended on June 30, 2019, are presented in CFFC Financial Statement 06302019. The charts presented on our Finances page […]
CFFC Facebook Posts – July 2019 – Part 1
07/01/2019 – An Emotional Reunion With My Donor’s Family – Lung transplantation is emotionally complex. That complexity increases if the recipient gets to meet the donor’s family. 07/02/2019 – Diet […]
CFFC Facebook Posts – June 2019 – Part 2
06/15/2019 – Navigating Disabilities Services and Transitioning to College – In a follow up to Gunnar’s prior blog, he offers recommendations on on of the first steps to take after […]
Clinical Trial Alerts – June 2019
Cystic Fibrosis Foundation distributed the following clinical trial updates in June. Click the trial title to get more details. June 10, 2019 Study of ABBV-3067 and ABBV-2222 in adults with […]
CFFC Facebook Posts – June 2019 – Part 1
06/01/2019 – Doing Better By Doing Less – This young man provides his approach to overcoming the depression associated with CF. 06/02/2019 – Nitric Oxide Shows Positive Signs in Clearing […]
CFFC Facebook Posts – May 2019 – Part 2
05/16/2019 – So, do you need a little extra incentive to join us at CFFC Education Day? Well, check out the picture. This is the stuff our keynote speaker, Jerry […]
CFFC Facebook Posts – May 2019 – Part 1
05/01/2019 – CF Awareness Lasts All Year – Yes, May is CF Awareness Month. The again, every day is CF awareness day. 05/02/2019 – CF-associated Bacteria and Fungi Affect Each […]
Input Request: Advanced CF Lung Disease Guidelines
CF Foundation Community Voice has issued a call for public comment on the draft Advanced CF Lung Disease Guidelines. Here is their announcement: The CF Foundation would like your input […]