Survey on Advanced Practice Providers
The CF Foundation’s Community Partnerships is seeking input from patients and families regarding advanced practice providers for CF patients. Here is the text of the announcement: The Cystic Fibrosis Foundation […]
Breathe for Bea Foundation Scholarship
The Breathe for Bea Foundation recently opened their cystic fibrosis scholarship program to people living with CF regardless of their state of residence. The foundation also offers other financial assistance […]
CFFC Facebook Posts – April 2018 – Part 1
For our web visitors who do not follow CFFC on Facebook, here are the posts added in the first half of April 2018. 04/02/2018 – AbbVie CF Scholarship Filing Deadline […]
38th Kit Taylor Lecture Recap
The presentation by Dr. Steven Freedman at the 38th Kit Taylor Memorial Lecture met the high expectations we have developed for this annual event. His discussion, Beyond the Lungs – […]
CFFC Facebook Posts – March 2018 – Part 2
For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of March 2018. 03/16/2018 – Why Mental Health Mattered When […]
CFFC Facebook Posts – March 2018 – Part 1
For our web visitors who do not follow CFFC on Facebook, here are the posts added in the first half of March 2018. 03/01/2018 – Why I Decided to Take […]
Survey Opportunity: Pain Management
Cystic Fibrosis Foundation, through their Community Voice program, has announced a survey relating to pain management. Here is the text of the announcement: Researchers at Johns Hopkins University are interested […]
Clinical Trial Alerts – March 2018
Cystic Fibrosis Foundation distributed the following clinical trial updates during the month of March. Click the trial title to get more details. The following alert was issued on March 1: […]
Transplant Booklets from Cystic Fibrosis Trust
Cystic Fibrosis Trust, an organization similar to Cystic Fibrosis Foundation that serves the United Kingdom, recently published three booklets that provide information on the various aspects of transplant. Although lung […]
CF Health Guides for Women
The Boston CF Center and Center for Young Women’s Health at Boston Children’s Hospital has produced a series of health guides written specifically for adolescent and young adult women. According to […]