Updated Opportunity to Provide Input
Adults living with CF who are served by the Rochester CF Center still have an opportunity to provide input regarding their interaction with the Center. Here is the announcement from […]
CFFC Facebook Posts – July 2017 – Part 2
For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of July 2017. 07/16/2017 – Cystic Fibrosis Around the World: […]
Clinical Trial Alerts – July 2017
Cystic Fibrosis Foundation distributed the following clinical trial updates during the month of July. Click the trial title to get more details. Two alerts were issued on July 28, 2017: […]
CFFC Facebook Posts – July 2017 – Part 1
For our web visitors who do not follow CFFC on Facebook, here are the posts added in the first half of July 2017. 07/01/2017 – Some Days – Our own […]
Financial Report for 2016-17 Fiscal Year
The results of our operations for the 2016-17 fiscal year, which ended on June 30, 2016, are presented in CFFC Financial Statement 06302017. A breakdown of the cumulative revenues and […]
CFFC Facebook Posts – June 2017 – Part 2
For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of June 2017. 06/16/2017 – Opportunity to Provide Input – […]
CFFC Facebook Posts – June 2017 – Part 1
For our web visitors who do not follow CFFC on Facebook, here are the posts added in the first half of June 2017. 06/01/2017 – Save the date: Saturday, September […]
Making Treatment Accessible for Cystic Fibrosis Patients
The Cystic Fibrosis Engagement Network recently published a white paper dealing with issues affecting access to CF treatments. The report notes: While the Orphan Drug Act successfully increased the research […]
Adult Guide to Cystic Fibrosis
Cystic Fibrosis Foundation has released a comprehensive reference document geared to the adult CF population. Their release states: The face of cystic fibrosis is changing as adults with CF now […]
CFFC Facebook Posts – May 2017 – Part 2
For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of May 2017. 05/16/2017 – 6 Remarkable Things to Know […]