Local Star Brightens New Year

If you have attended CF events in the Rochester area, you have probably heard the beautiful and inspiring voice of Brianna Collichio. She opened CFFC’s first 3-on-3 Basketball Tournament. More […]

Happy Holiday Wishes from CFFC

December is populated with significant holidays for many religions of the world. A common theme across these holidays is birth or new beginnings. May this season bring you a renewed […]

Gene Editing White Paper

The discovery of the CF gene gave rise to the dream of a “cure” through gene therapy. Gene editing is one of the techniques being investigated; however, the method and […]

Clinical Trial Alert – 12/15/2016

CFF provided the following clinical trial update on 12/15/2016: Vertex Lumacaftor (VX-809) and Ivacaftor in Children with CF aged 6 to 11 years and have two copies of the delF508 […]

Clinical Trial Alerts – 12/7/2016

CFF provided the following clinical trial update on 12/7/2016: Phase 2 study of CTP-656 in adults with CF who are currently taking ivacaftor (Kalydeco®) Description: This study is taking place […]

Your Opinion Matters

The Cystic Fibrosis Foundation (CFF) is seeking viewpoints from the CF community to assist in setting the direction for research funded through CFF. Here is the text of their recent […]

Clinical Trial Alerts – 11/30/2016

CFF provided the following clinical trial updates on 11/30/2016: Phase 3 study of tezacaftor (VX-661) combination drug in children with cystic fibrosis Description: This two-part study is taking place at […]