CFFC Facebook Posts – December 2016 Part 2
For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of December 2016. 12/16/2016 – 3-D Map of CF Protein […]
Local Star Brightens New Year
If you have attended CF events in the Rochester area, you have probably heard the beautiful and inspiring voice of Brianna Collichio. She opened CFFC’s first 3-on-3 Basketball Tournament. More […]
Happy Holiday Wishes from CFFC
December is populated with significant holidays for many religions of the world. A common theme across these holidays is birth or new beginnings. May this season bring you a renewed […]
Gene Editing White Paper
The discovery of the CF gene gave rise to the dream of a “cure” through gene therapy. Gene editing is one of the techniques being investigated; however, the method and […]
CFFC Facebook Posts – First Half of December 2016
For our web visitors who do not follow CFFC on Facebook, here are the posts added in the first half of December 2016. 12/01/2016 – Boost CFFC with Your Holiday […]
Clinical Trial Alert – 12/15/2016
CFF provided the following clinical trial update on 12/15/2016: Vertex Lumacaftor (VX-809) and Ivacaftor in Children with CF aged 6 to 11 years and have two copies of the delF508 […]
Clinical Trial Alerts – 12/7/2016
CFF provided the following clinical trial update on 12/7/2016: Phase 2 study of CTP-656 in adults with CF who are currently taking ivacaftor (Kalydeco®) Description: This study is taking place […]
Your Opinion Matters
The Cystic Fibrosis Foundation (CFF) is seeking viewpoints from the CF community to assist in setting the direction for research funded through CFF. Here is the text of their recent […]
Clinical Trial Alerts – 11/30/2016
CFF provided the following clinical trial updates on 11/30/2016: Phase 3 study of tezacaftor (VX-661) combination drug in children with cystic fibrosis Description: This two-part study is taking place at […]
CFFC Facebook Posts – November 2016 – Part 2
For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of November 2016. 11/16/2016 – A Message to the Community […]