CFFC Facebook Posts – September 2021 – Part 2
09/16/2021 – Inhaled drug could treat rare cystic fibrosis mutations – This article, which comes from Israel, describes the early stages of research on an inhaled approach to correcting the […]
CFFC Facebook Posts – September 2021 – Part 1
09/01/2021 – Researchers Explore Trikafta in Younger Patients – This article describes four research projects looking at extending the use of Trikafta to children, including infants. 09/02/2021 – New bipartisan […]
Clinical Trial Alerts – September 2021
Cystic Fibrosis Foundation has issued the following clinical trial alerts in September. September 7, 2021 Study to evaluate nebulized BX004-A in adults with cystic fibrosis and chronic Pseudomonas aeruginosa (BiomX […]
Good Day for Golf, Good Day for CFFC
Within an hour, this quiet scene from Saturday, September 11th was abuzz with golfers lending a hand to make CFFC’s Living with CF Golf Tournament a success. It was an […]
CFFC Facebook Posts – August 2021 – Part 2
08/16/2021 – Depression, Anxiety Common Among CF Patients – Another study where the results come as no surprise. During our Education Day webinar, there was an interesting discussion of the […]
CFFC Facebook Posts – August 2021 – Part 1
08/01/2021 – I’m Finally Falling Asleep Without Battling Anxiety – This is a good version of Joni Mitchell’s lyric “you don’t know what you’ve got til it’s gone.” 08/02/2021 – […]
Another Educational Day
CFFC held another Education Day on August 4th. It was different from previous years because it was virtual rather than in person. However, it was like our prior events in […]
Clinical Trial Alerts – August 2021
The following clinical trial alerts were issued by Cystic Fibrosis Foundation in August 2021. August 2, 2021 Study to evaluate inhaled AR-501 in healthy adults and adults with cystic fibrosis […]
CFFC Facebook Posts – July 2021 – Part 2
07/16/2021 – Darcy’s Blog: Our IVF Process – Timeline, Cost, and All the Nitty Gritty – As Paul Harvey used to say, “The rest of the story.” Here is Darcy […]
CFFC Facebook Posts – July 2021 – Part 1
07/01/2021 – Researchers discover unique ‘spider web’ mechanism that traps, kills viruses – While not directly related to CF, this article points to a couple of factors in CF treatment. […]