Another (Fiscal) Year Wrapped Up

CFFC operates on a fiscal year that runs from July 1 to June 30. We have completed the annual report for the year ended June 30, 2021. You can review […]

CFFC Facebook Posts – June 2021 – Part 2

06/16/2021 – Dealing With Ignorance When You Have CF – It would be pretty unusual if you haven’t encountered a relative, friend or complete stranger who has made some off […]

CFFC Facebook Posts – June 2021 – Part 1

06/01/2021 – David Van Beers: A Legacy of Hope – Inspirational stories of life with CF come from all over the world; this one comes from Canada. 06/02/2021 – Phage […]

CFFC Facebook Posts – May 2021 – Part 2

05/16/2021 – Fully Vaxxed and Shedding my Mask (Most of the Time) – Gunnar Esiason’s reaction to the updated CDC COVID-19 guidelines. NOTE: Read the article, not just the headline, […]

CFFC Facebook Posts – May 2021 – Part 1

05/01/2021 – Researchers discover how Mycobacterium abscessus evolves – We have heard a lot about virus mutations over the last year. This study of bacterial mutations may hold a key […]

Clinical Trial Alerts – May 2021

Cystic Fibrosis Foundation issued the following clinical trial alerts in May. May 3, 2021 MAYFLOWERS: Study of pregnancy in women with cystic fibrosis Status: Enrolling Description: This observational study will […]

41st Kit Taylor Memorial Lecture

The Kit Taylor Memorial Fund, in cooperation with the URMC Department of Pediatrics, annually sponsors a presentation by individuals with national recognition in CF related fields. This year, the 41st […]

CFFC Facebook Posts – April 2021 – Part 2

04/16/2021 – The Unseen Struggles of CF – With the added stress of the pandemic protocols, the mental health aspects of CF are getting enhanced attention. 04/17/2021 – Supporting Your […]

CFFC Facebook Posts – April 2021 – Part 1

04/01/2021 – Taking Trikafta Topped My Experience on Reality TV – Brianna Collichio is not the only person with a connection to Trikafta to get her chance on TV. 04/02/2021 […]

Clinical Trial Alerts – April 2021

Cystic Fibrosis Foundation issued the following clinical trial alerts in April April 13, 2021 OPTION: Study of AzurRx MS1819 in people with cystic fibrosis (CF) and exocrine pancreatic insufficiency who […]