CFFC Facebook Posts – March 2021 – Part 2
03/16/2021 – A Walking Miracle! Brianna Collichio Defies All Odds – American Idol 2021 – This is probably old news to everyone in our community, but it can’t be repeated […]
CFFC Facebook Posts – March 2021 – Part 1
03/01/2021 – What Will the Return to Normal Be Like After the Pandemic? – This blogger deals with the question we all probably have. 03/02/2021 – Luke’s story: balancing challenges […]
Help fight for the Adult CF Program in New York
Cystic Fibrosis Foundation has issued a call for support to add the Adult CF Assistance Program back into the upcoming State budget. Here is the text of their appeal. Last […]
CFFC Facebook Posts – February 2021 – Part 2
02/16/2021 – Getting started in a career in research – We missed this item on International Day of Women and Girls in Science but the topic is relevant every day. […]
CFFC Facebook Posts – February 2021 – Part 1
02/01/2021 – My Experience in a COVID-19 Vaccine Trial – The experience of this blogger indicates that people living with CF don’t need to fear the COVID-19 vaccine. 02/02/2021 – […]
Clinical Trial Alerts – February 2021
Cystic Fibrosis Foundation issued the following clinical trial alerts in February. February 5, 2021 Phase 3 study of inhaled vancomycin in adults and children 6 years and older with cystic […]
Workshop Opportunity: STRC mHealth Workshop
Cystic Fibrosis Foundation Community Voice has issued the following call for volunteers to participate in a workshop looking at potential mHealth (mobile technology to achieve improved health goals) products. Here […]
CFFC Facebook Posts – January 2021 – Part 2
01/16/2021 – Phase 1/2 Trial to Test Phage Therapy for Chronic P. aeruginosa Infections – This clinical trial seeks to move phage therapy from theory to practice. 01/17/2021 – What […]
Clinical Trial Alerts – January 2021
Cystic Fibrosis Foundation issued the following clinical trial alerts on January 4, 2021. Note, although two of the trials have the same title, they apply to different age groups. Phase […]
CFFC Facebook Posts – January 2021 – Part 1
01/01/2021 – FDA Expands Labels for 3 Vertex CFTR Modulators – Let’s start the new year with good news on the scientific front. The expanded approvals will increase the number […]