Feedback Opportunity: CF Genetic Counseling Recommendations
The identification of the CF gene has had several impacts, including neonatal screening and advising on the ramifications of a CF diagnosis. Cystic Fibrosis Foundation circulated a request for input […]
CFFC Facebook Posts – December 2020 – Part 2
12/16/2020 – Moderna’s COVID-19 Vaccine FDA Briefing Mentions Cystic Fibrosis – In a sequel to his proclamation on getting the COVID vaccine, Gunnar Esiason shares some observations about the Moderna […]
CFFC 2020 – The Year in Review
To say that 2020 was “unusual” would be an understatement. It was a year aptly described by Charles Dickens in his opening in The Tale of Two Cities: “It was […]
CFFC Facebook Posts – December 2020 – Part 1
12/01/2020 – An explainer on genetic therapies and cystic fibrosis – UK’s Cystic Fibrosis Trust published a brief primer on DNA and genetic therapies. 12/02/2020 – Not Everyone Has Access […]
Survey Opportunity: Genetic-based Therapies
Cystic Fibrosis Foundation is seeking input regarding genetic-based therapies. Here is the announcement from Community Voice: The CF Foundation is conducting a survey to better understand the community’s perspective on […]
CFFC Facebook Posts – November 2020 – Part 2
11/16/2020 – The unique support a sibling can bring – We often talk ab out the important role parents play in CF care, but siblings are also an key part […]
Making Holidays Happier
It is CFFC’s mission to support CF patients and families in their daily struggle with cystic fibrosis. In this period of increased isolation, “support” can be as simple as letting […]
NACFC 2020 Sessions Available on YouTube
Cystic Fibrosis Foundation has announced the availability of videos from the 2020 North American Cystic Fibrosis Conference (NACFC). CFF has created a YouTube page that links to recordings from 56 […]
Clinical Trial Alerts – November 2020
Cystic Fibrosis Foundation issued the following clinical trial alerts in November. November 4, 2020 Study to evaluate inhaled AP-PA02 in adults with cystic fibrosis and chronic Pseudomonas aeruginosa (Armata Phase […]
CFFC Facebook Posts – November 2020 – Part 1
11/01/2020 – Topical discussions at the North American Cystic Fibrosis Conference – This news item from Cystic Fibrosis Trust presents highlights from the NACFC as viewed from the other side […]