The Living with CF page of our Information Resources has been updated with some exciting new links. These links were triggered by the recent announcement from the Boomer Esiason Foundation (BEF) on the addition of Club CF to its suite of on-line resources for the CF community.
The BEF emphasizes today's positive outlook for CF patients. As stated in their Thriving with Cystic Fibrosis section: "The experience of living with cystic fibrosis is markedly different today than it was decades ago. Thanks to the discovery of the CF gene, the availability of effective drug therapies and advances in technology, the 30,000 Americans who deal with the disease day in and day out are living longer and fuller lives. In a word, they are thriving."
Thriving with Cystic Fibrosis offers connections to a wide variety of resources. Of particular interest:
Club CF features stories from individuals with CF who are an inspiration to the CF community.
CF Wind Sprints are short-format videos offering quick tips for living with cystic fibrosis.