CF Patient Registry Reports
The CF Foundation recently released their annual reports drawn from the analysis of the data collected in the CF Patient Registry. There is a lot of information – and hope […]
CFF’s New Department – Community Partnerships
The Cystic Fibrosis Foundation has appointed the former director of the Buffalo CF Center to lead a new department – Community Parnerships. Here is the text from the recent announcement: […]
10 Basic Facts About CF
Cystic Fibrosis News Today recently posted an article listing 10 Facts About Cystic Fibrosis. Those living with CF won’t find anything new in the list. However, we’re repeating the list […]
Report from the NACFC
CFFC recently received a “customer’s” view from the 2015 North American Cystic Fibrosis Conference (NACFC). CFFC sponsored attendance at the NACFC for Chris Kvam. You may be familiar with Chris’ […]
Evolution in Adult Care
We have received exciting news from URMC regarding their approach to caring for individuals with chronic conditions that originated in childhood (including cystic fibrosis). The Complex Care Center (CCC) is […]
CF Peds Clinic Update
CFFC representatives recently met with the staff of the Rochester CF pediatric center to explore ways our organization could lend a hand to clinic staff. One major topic of discussion […]
CFF Community Blog Highlights – December 2015
The CF Foundation hosts a community blog to “share some of our favorite blog posts that represent the reality of living with CF.” Here are the links to blog entries […]
CFF Community Blog Highlights – November 2015
The CF Foundation hosts a community blog to “share some of our favorite blog posts that represent the reality of living with CF.” Here are the links to blog entries […]
CF Foundation Introduces Community Blog
The CF Foundation recently introduced a community blog to, in the words from their announcement, they “wanted to share some of our favorite blog posts that represent the reality of […]
Starting the Conversation About Emotional Wellness
The Cystic Fibrosis Foundation released a video of the One-on-One Live session at this year’s North American Cystic Fibrosis Conference. The video presents the discussion of mental health between Matt […]