BreatheCon 2021 panel recordings now available (con selecciones en español)
Here is the announcement from Cystic Fibrosis Foundation regarding recorded sessions from BreatheCon 2021. BreatheCon is a two-day event for adults with cystic fibrosis, which was held on Sept. 24-25, […]
Good Day for Golf, Good Day for CFFC
Within an hour, this quiet scene from Saturday, September 11th was abuzz with golfers lending a hand to make CFFC’s Living with CF Golf Tournament a success. It was an […]
Another Educational Day
CFFC held another Education Day on August 4th. It was different from previous years because it was virtual rather than in person. However, it was like our prior events in […]
Another (Fiscal) Year Wrapped Up
CFFC operates on a fiscal year that runs from July 1 to June 30. We have completed the annual report for the year ended June 30, 2021. You can review […]
41st Kit Taylor Memorial Lecture
The Kit Taylor Memorial Fund, in cooperation with the URMC Department of Pediatrics, annually sponsors a presentation by individuals with national recognition in CF related fields. This year, the 41st […]
Help fight for the Adult CF Program in New York
Cystic Fibrosis Foundation has issued a call for support to add the Adult CF Assistance Program back into the upcoming State budget. Here is the text of their appeal. Last […]
CFFC 2020 – The Year in Review
To say that 2020 was “unusual” would be an understatement. It was a year aptly described by Charles Dickens in his opening in The Tale of Two Cities: “It was […]
Making Holidays Happier
It is CFFC’s mission to support CF patients and families in their daily struggle with cystic fibrosis. In this period of increased isolation, “support” can be as simple as letting […]
NACFC 2020 Sessions Available on YouTube
Cystic Fibrosis Foundation has announced the availability of videos from the 2020 North American Cystic Fibrosis Conference (NACFC). CFF has created a YouTube page that links to recordings from 56 […]
Vote Safely in 2020
In recognition of the policy issues that may have a significant impact on the CF community, Cystic Fibrosis Foundation is offering information on those issues as well as guidance avoiding […]