CFFC Annual Report 2020
CFFC completed another fiscal year on June 30, 2020. The financial results of that year are presented in CFFC Financial Statement 06302020. The cumulative revenues and expenses since CFFC was […]
Ineligibility/Unable to Benefit from Approved CFTR Modulator Therapies
Cystic Fibrosis Foundation is seeking to form an ad hoc group of individuals who are unable to take CFTR modulators. Here is the announcement from Community Voice: To support the […]
CF Foundation Statement on COVID-19 Preparedness
The following statement was released on March 11, 2020 by Dr. Michael Boyle, Cystic Fibrosis Foundation, President and CEO. We take our responsibility to the CF community seriously. For the […]
Trikafta Up Close and Personal
Of course, the CF community is all abuzz with the news about Trikafta. As with such significant advances, the focus is on the benefits and promising future. But there is […]
Announcing Tune Up Tins
Cystic Fibrosis Family Connection is excited to announce the start up of a new program: the Tune-Up Tin! Tune-Up Tins are designed to give you a break from the routine […]
Publications from Cystic Fibrosis Australia
Cystic Fibrosis Australia has produced a wide range of brochures covering all aspects of life with CF. While some of the material is specific to Australia, the majority of the […]
Living with CF Golf Tournament – 2019 Results
After last year’s break in the action, CFFC’s Living with CF Golf Tournament returned in 2019 with good spirits, good weather and, as a result, good golf. Eighteen golfers gathered […]
Resources for Supporting Families Coping with Chronic Illness
While cystic fibrosis presents many unique challenges, people living with CF share experiences with individuals dealing with other chronic illnesses. Online MSW Programs produced a comprehensive list of resources to […]
CFFC Annual Financial Report for 2018-19
The results of our operations for the 2018-19 fiscal year, which ended on June 30, 2019, are presented in CFFC Financial Statement 06302019. The charts presented on our Finances page […]
Watch the 39th Annual Kit Taylor Memorial Lecture
Dr. Andrea Kelly provided interesting insight on the evolving world of adults with CF in her presentation, “The Intersection of Cystic Fibrosis & Endocrinology,” at the 39th Annual Kit Taylor […]