Booster Jots

When things are happening around you – happening to you, any control you can exercise will boost your spirits. That’s the basic idea behind Booster Jots. Learn about the concept […]

Applied Education Day

This year’s CF Education Day was not only a learning experience; it was also an opportunity to apply what we learned. The event was structured as a three-part workshop modeled […]

Cystic Fibrosis Tips n’ Tricks

Introducing another YouTube channel dedicated to life with CF – Cystic Fibrosis Tips n’ Tricks. The link is to the home tab for Anne Barkley’s channel; click the “Videos” tab […]

Cystic Fibrosis HealthWell Foundation

Paying for appropriate care is one of the many challenges faced by people living with CF. We have added a link to another possible source for financial assistance – HealthWell […]

Supplement to Genetic Counselors Presentation

Kori Tolbert Doherty, CFFC president and an adult living with CF, spoke to the annual conference of Counsyl, a genetic counseling company. In a previous post (CFFC President Speaks to […]

Five Videos on CF Drug Pipeline

The CF Foundation released a series of five videos to provide updates on the research in major areas of CF treatments. The videos are brief (under three minutes) but provide […]

Kit Taylor Recap

The Kit Taylor Memorial Lecture never disappoints. The 36th installment of this annual event, held on April 4, 2016, continued the tradition of important and relevant topics presented by engaging […]

CFFC President Speaks to Genetics Counselors

Kori Tolbert Doherty, CFFC president and an adult living with CF, spoke to the annual conference of Counsyl, a genetic counseling company. Fortunately, her presentation was recorded and we are […]

CFTR Mutations

Although cystic fibrosis is considered to be a single disease, we have all observed the wide range of symptoms experienced by people living with CF. A chart contained in the […]

CF Patient Registry Reports

The CF Foundation recently released their annual reports drawn from the analysis of the data collected in the CF Patient Registry. There is a lot of information – and hope […]