Contact CFFC

Feb

CF Roundtable – Winter 2020


United States Adult Cystic Fibrosis Assn has issued the Winter 2020 edition of CF Roundtable. The focus topic of the Winter issue is insurance and there are many other informative articles.

You can access CF Roundtable in two formats. Just click the appropriate link below.

The Editor’s Notes gives you a good overview of the issues contents.

Happy New Year from all of us at CF Roundtable! Our focus topic this issue tackles the complexities of insurance battles we all face in managing CF. On our cover, our President, Beth Sufian, high-lights what self-insured group health benefit plans are and how they could potentially hinder access to care for individuals with CF. Jeanie Hanley shares a horrifying story involving a drone spy. Lora Moserwrites about her battle with coverage through her Healthwell grant. In her column, “Speeding Past 50,” Kathy Russell shares her insights on security relative to health and insurance. Leah Sands reminisces about the huge learning curve and responsibility in taking care of her own insurance as a teen.

In her wellness column, Julie Desch breaks down anxiety and the importance of using various tools, such as mindfulness, to work through it. In this issue, Isabel Stenzel Byrnes talks about setting goals in her column “Spirit Medicine.” Molly Pam discusses potential insurance pitfalls and things to consider when starting down the fertility path in the Family Matters column. Kat Porco writes about the effect of Trikafta in blood sugar management in her CFRD Education column. In his column, Mark Tremblay writes about emotional exacerbations and what they look like in CF. As always, Laura Tillman does a wonderful job compiling all the latest research and information about CF from the internet.

In our “Voices From The Roundtable” section, Linda Strattonshares her perspective as an “elderly” CF patient starting Trikafta along with one of her original poems. Colin Maydahl poses the question “what will you do now that you’re on Trikafta”? In our column, “In The Spotlight,” read about how Lorena Wood’s life was shaped by her having CF and her challenges and joys of being a missionary.

CF Roundtable couldn’t happen without the board of directors and the help, support, and commitment of everyone in the community, espe-cially our donors. As we start off 2020, we’d like to extend our sincerest gratitude for all of the financial contributions throughout the past year. If you’re interested in writing for CF Roundtable, check out page 3 for a list of our future focus topics. Don’t see anything on the list that interests you? Our “Voices From The Roundtable” section features the voices of everyone in the CF community. With that in mind, send us your thoughts, whether they’re in the form of an article, poetry, song lyrics, or anything else. The stories in our newsletter are the heart and soul of our organization. From all of us at CF Roundtable, we wish you all health and happiness in the new year.

In the words of Effie Trinket in The Hunger Games, may the odds be ever in your favor,

Sydna




Comments are closed.