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Apr

CFFC Facebook Posts – April 2020 – Part 2

04/16/2020How I Fight Feelings of Isolation – Once again, an individual living with CF is using her experience to teach the rest of us how to cope with the “stay at home” atmosphere we are now living in.

04/17/2020CFFC Face Mask Offer – We are pleased to announce a timely offer of fabric face masks to members of the Rochester/Finger Lakes CF community. Clink the link below to learn more.

04/18/2020COVID 19 DEFENSE for Cystic Fibrosis Patients, or Anyone With Compromised Immunity – CFFC past president, Kori Tolbert Doherty, provides information on a simple step you can take in improve your protection against COVID-19. Her introduction says:

“A prompt from my Continuum colleague and Buteyko practitioner Robert Litman , encouraged me into some more research around two simple things we can do to support ourselves with potential COVID 19 exposure.
(So this means all of us given the spread and inability to tell the extent of who is carrying.)

Nasal breathing and humming.

I created this video to share this info with our CF Community, anyone that is at higher risk from exposure to this virus, and well, just anyone in general because when it cones down to it, it’s just good info for all ?.

04/19/2020Protein Called TAS2R38 Linked to Respiratory Tract Complications in CF – This study provides further explanation for the differences in CF symptoms.

04/20/2020Revealing the secrets of bugs by tracking their genetics – The kind of work that has been done on CF infections is being used to solve the COVID-19 riddle.

04/21/2020How Living in Portugal Led to a Late Diagnosis – This blog post reminds us that CF care can vary greatly in different parts of the world (or different parts of this country).

04/22/2020 – CF Roundatable – Spring 2020 – This issue offers a mix of news on CF weight issues and COVID. As usual, good reading.

04/23/2020Faces of a Clinical Trial – Michael Hamilton – There’s a lot of publicity about drug and vaccine development. This blog from Canada gives a personal view from inside a clinical trial.

04/24/2020Cells Grown in Artificial Organs May Be Most Viable for Lung Disease Research – If you need any more evidence of the wonders of science, this report on a study of lab methods demonstrates the application of scientific method to accelerate research into CF related issues.

04/25/2020COVID19 & CF: Know Your Legal Rights – Three Webinar Dates – There is more to know than medicine to manage life with CF. This webinar sponsored by Cystic Fibrosis Foundation will be offered on 4/25, 5/2 and 5/9.

04/26/2020 Poppy’s story: Coronavirus, mental health and staying fit – Advice on surviving quarantine from across the ocean.

04/27/2020Darcy’s Blog: Fertility Treatments, COVID19, the Salem Witch Trials, and Finding Nemo – Although COVID is in the title, this blog will give you a pleasant break from the topic of the day.

04/28/2020Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say – This article points to an emerging (accelerating) discussion of the role of telemedicine in routine care.

04/29/2020CFFC Face Mask Offer – Since we announced our offer to provide face masks to CF households, we have distributed 35 masks to 8 families. We are rebuilding our stock so we can fill additional requests.

04/30/2020Grateful for the People Who Support Me Along My CF Journey – In the midst of the pandemic, we have seen the importance of thanking those who work for our benefit. This blog extends the concept to the on-going support required for people living with a chronic illness.


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