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CFFC Facebook Posts – August 2016

For those of you who don’t follow CFFC on Facebook, here are the original posts made to our page during July 2016.

08/03/20165 Bruce Lee Inspirational Quotes – Cystic Fibrosis News Today shared five quotes from Bruce Lee that are applicable to life with CF.

08/04/2016Seeing My Future for the First Time With CF – Dreaming of the future is not a break from reality; it’s building a new reality.

08/05/2016Stem cell points the way to individualized treatment of cystic fibrosis – Interesting research from the Netherlands. Imagine advance testing of whether a medication will work for you BEFORE you take it. Check back tomorrow for a video on this topic.

8/06/2016Mini guts for Cystic Fibrosis – This video deals with an approach to fine tune treatments to each individual. See yesterday’s post for more details on the concept of mini-guts, or organoids.

08/07/2016How I Get Past a First Impression – Gunnar Esiason offers his advice on managing your CF identity in the Internet age.

08/08/2016Living with Cystic Fibrosis: The College Years – The improvements in CF treatments have produced greater attention to the transition from “child” to “adult.” This CFF video deals with one aspect of that transition – and talks about the challenge for both the person with CF and her/his parents.

08/11/2016Adult Advisory Council Helps CF Foundation Reach Out to Adults With CF – An engaging story on the evolution of the Cystic Fibrosis Foundation in response to the growing adult population.

08/12/2016Lung Transplant – Cystic Fibrosis News Today pointed us to this animated video that talks about some the issues encountered in lung transplantation. The wry Australian humor livens up the discussion. (You can skip the opening ad after a few seconds.)

08/13/2016How I Balance Life as a Single Parent With CF – Living with CF: challenging. Parenting: hard work. Being a parent with CF: challenging hard work. A single parent with CF: incredible! From the CF Community Blog, an inspiring story about a woman who makes it work.

08/14/2016Study shows how bacteria evolve in the lungs of cystic fibrosis patients – A study conducted in Portugal sheds some light on the adaptation cycles of lung infections and points to the possibility of tailoring treatments to those cycles.

08/16/20165 Things Every College Freshman With CF Must Do – Some timely thoughts as families gear up to send someone off to college.

08/17/2016How One School Nurse Is Preparing for Three Students With CF at the Same School – Speaking of “back to school,” here’s some insights on the school implications of CF infection prevention protocols.

08/18/2016New 4-D Scanner Able to Peer Inside Lungs and Visualize Changes Caused by Cystic Fibrosis – Getting a better look at – and improved diagnosis of – what’s going on in the lungs.

08/20/2016The Question to Ask Yourself When Considering a Clinical Trial – Thanks to all those who donate their time – and their bodies – in the quest for better treatments.

08/21/2016Young Adults with CF Troubled by Depression and Often Ignore Treatments, Danish Study Reports – Life with CF involves challenges beyond the physical.

08/23/2016Cystic Fibrosis is Not Just a “Childhood Disease” – This video shares some images captured by Ian Pettigrew for two of his projects intended to show a future to younger people living with CF.

08/24/2016Cystic Fibrosis Related Diabetes – Here’s a thorough and easily understood explanation of CF related diabetes.

08/25/201660 for 60: Living Your List in Service of Others – Jerry Cahill has been inspiring folks with his story for several years. Here’s his more optimistic take on the “bucket list.”

08/26/2016Opportunistic Pathogen Increasing in Cystic Fibrosis Patients – While science is producing good news regarding CF treatments, it is also discovering new challenges.

08/27/2016 – Traveling the country with Cystic Fibrosis – This young man shows us that the advances in CF treatments not only extent life but also allow you to expand your life experiences.

08/28/2016 – Cystic Fibrosis Healthcare in the Digital Age – This video from Cystic Fibrosis Trust describes how new technologies can improve and transform the lives of cystic fibrosis patients.

08/29/2016 – What I Learned During My Internship at the CF Foundation – One person’s reflection on the Cystic Fibrosis Foundation.

08/30/2016 – CFTR Abundant in Gut, Possible Reason for Intestinal Problems in CF Patients – So, it may be more than enzyme deficiency?

08/31/2016 – Teaching as We Learn: Visiting a CF Care Center with Policymakers – “Show and tell” is an effective education tool well beyond primary school years.


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