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CFFC Facebook Posts – August 2017 – Part 1

For our web visitors who do not follow CFFC on Facebook, here are the posts added in the first half of August 2017.

08/01/2017Clinical Trial Alerts – July 2017 – July research updates from Cystic Fibrosis Foundation.

08/02/2017SmartVest Now Comes with Built-in Wireless Technology, Assisting Therapy Management – Technology advances with a common treatment option.

08/03/2017How I Came to Love My Scars, My Body, and Myself – Learning to love yourself for who you are is important in meeting the challenges of chronic disease.

08/04/2017Updated Opportunity to Provide Input – There is still time to add your insights on your interactions with the CF Center.

08/05/2017Scientists successfully used CRISPR to fix a mutation that causes disease – Big news for “preventing” genetic disease, but now we have to get serious with the medical ethics discussion.

08/06/2017Cystic Fibrosis Around the World: France – Gunnar initiates the second phase of his CF world in France.

08/07/2017The Senate Heard Our Voice: The Role of Advocacy in CF – Undoubtedly, the CF community contains a broad spectrum of views on government; however, we appreciate CFF’s efforts to expand treatments and protect the gains that have been made.

08/08/2017Relizorb Improves Nutritional Status in Tube-Fed CF Patients, Study Finds – Good news for those who include tube feeding in their treatment regimen.

08/09/2017One Month to Go – Recruiting teams for the Living with CF Golf Tournament

08/10/2017Coughing Ourselves to Death – Interesting research that could lead to a treatment to reduce lung damage caused by chronic infections.

08/11/2017How My Decision to Pursue Enteral Tube Feeding as a Teen Improved My Life as an Adult – While the idea of a feeding tube may be scary, this young man describes the benefits he has received.

08/12/2017Production of Cystic Fibrosis and COPD Bacteria-killing Therapy AB569 Is on Track for Phase 1 Trial – Another approach to overcome bacterial resistance to treatments.

08/13/2017Cystic Fibrosis Around the World: Lebanon – This stop on Gunnar’s world tour should make you feel better about your care opportunities.

08/15/2017Contamination Concerns Lead to FDA Warning Against Use of PharmaTech Liquid Products – Spread the word about this important health safety announcement.


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