CFFC Facebook Posts – August 2017 – Part 1
For our web visitors who do not follow CFFC on Facebook, here are the posts added in the first half of August 2017.
08/01/2017 – Clinical Trial Alerts – July 2017 – July research updates from Cystic Fibrosis Foundation.
08/02/2017 – SmartVest Now Comes with Built-in Wireless Technology, Assisting Therapy Management – Technology advances with a common treatment option.
08/03/2017 – How I Came to Love My Scars, My Body, and Myself – Learning to love yourself for who you are is important in meeting the challenges of chronic disease.
08/04/2017 – Updated Opportunity to Provide Input – There is still time to add your insights on your interactions with the CF Center.
08/05/2017 – Scientists successfully used CRISPR to fix a mutation that causes disease – Big news for “preventing” genetic disease, but now we have to get serious with the medical ethics discussion.
08/06/2017 – Cystic Fibrosis Around the World: France – Gunnar initiates the second phase of his CF world in France.
08/07/2017 – The Senate Heard Our Voice: The Role of Advocacy in CF – Undoubtedly, the CF community contains a broad spectrum of views on government; however, we appreciate CFF’s efforts to expand treatments and protect the gains that have been made.
08/08/2017 – Relizorb Improves Nutritional Status in Tube-Fed CF Patients, Study Finds – Good news for those who include tube feeding in their treatment regimen.
08/09/2017 – One Month to Go – Recruiting teams for the Living with CF Golf Tournament
08/10/2017 – Coughing Ourselves to Death – Interesting research that could lead to a treatment to reduce lung damage caused by chronic infections.
08/11/2017 – How My Decision to Pursue Enteral Tube Feeding as a Teen Improved My Life as an Adult – While the idea of a feeding tube may be scary, this young man describes the benefits he has received.
08/12/2017– Production of Cystic Fibrosis and COPD Bacteria-killing Therapy AB569 Is on Track for Phase 1 Trial – Another approach to overcome bacterial resistance to treatments.
08/13/2017 – Cystic Fibrosis Around the World: Lebanon – This stop on Gunnar’s world tour should make you feel better about your care opportunities.
08/15/2017 – Contamination Concerns Lead to FDA Warning Against Use of PharmaTech Liquid Products – Spread the word about this important health safety announcement.