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CFFC Facebook Posts – February 2017 – Part 2

For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of February 2017.

02/17/2017Researchers Developing Mobile Respiratory Device for Children with Lung Failure – Children (especially) need mobility. This research will help children hospitalized for severe exacerbation.

02/18/2017Father Worries That Proposed Health Care Reforms Could Affect Daughters With CF – An all too familiar story.

02/19/2017Do People With Cystic Fibrosis Experience FOMO? – Gunnar’s take on one aspect of isolation felt by people living with CF.

02/20/2017 – 6 Foods That Can Help You Fight a Cold or Flu – Pep up your menu while helping fight off cold weather illness.

02/21/2017Taking Care of Yourself When Your Spouse Has CF – CF affects more people than just the one with the diagnosis.

02/22/2017Clinical Trial Alerts – February 2017 – A new alert (concerning Arikace) has been added to our list of clinical trial alerts for February.

02/23/2017 – Once-daily Tobramycin Treatment Does Not Harm Kidneys of CF Patients, Study Says – This study improves the understanding of safe dosages of Tobramycin.

02/24/2017Cystic Fibrosis My Way: Enzymes and Chest PT with Johnny – One in a series produced by Children’s Hospital of Philadelphia. In this one, a mom demonstrates two essential treatments for a young child.

02/25/2017 – When Evidence Says No, But Doctors Say Yes – A long read that is well worth your time. The article covers the importance of patient advocacy, the forces that influence research, and the balance in investment in prevention versus treatment. A tip of the hat to a member of our extended CF community for sharing this article.

02/26/2017The Butter Cracker Stacker: Piling on Major’s Calories – Tackling the challenge of picky eaters.

02/27/2017Exercise is key to building up lungs for Cystic Fibrosis patients – Thanks to two exercise buffs in our local CF community for pointing out this article.

02/28/2017Bone Marrow Cell Transplant May Lead to CF Treatment, Study Says – Another interesting approach to “fixing” the CFTR gene.

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