CFFC Facebook Posts – July 2021 – Part 1
07/01/2021 – Researchers discover unique ‘spider web’ mechanism that traps, kills viruses – While not directly related to CF, this article points to a couple of factors in CF treatment. One, treatments are more effective when they are administered where disease enters the body. Two, you have to be alert to adverse side affects.
07/02/2021 – CF Inspired Me to Pursue Pre-Med – The CF community – including our local community – benefits from the support of people with no direct connection to CF.
07/03/2021 – Another (Fiscal) Year Wrapped Up – Money isn’t everything but it is essential to keep CFFC operating. We have published our annual report for the year ended June 30th.
07/04/2021 – Low Aerobic Capacity Linked to Higher Risk of Exacerbations – Once again, a study has confirmed a common assumption: aerobic exercise can reduce hospitalizations and improve the long-term outlook.
07/05/2021– Advocating Alongside My Sister With CF – This blog focuses on Cystic Fibrosis Foundation’s Teen Advocacy Day; however, the message of support within the family is an important one.
07/06/2021 – A Search and Rescue Mission into my Nuts – the Male Side of IVF with CF – A story of promise for men with CF who want to have a family. [BTW: This may be a topic that comes up when Gunnar and Darcy speak at Education Day on August 4th.)
07/07/2021 – Joint Disease More Common With P. aeruginosa Infection, Female Sex – Add joint disease to the growing list of ailments that become more prevalent in an aging CF population.
07/08/2021 – How We Dealt With Our Newborn’s CF-Related Bowel Problems – This is a bit of a horror story – difficult for any parent to read, but the outcome reminds us of the miracles delivered through quality health care.
07/09/2021 – New Strategy Corrects CF Splicing Defects in Lab Models – This research could bring us closer to therapeutics to correct the CFTR defect in lung tissue.
07/10/2021 – The Internet Taught Me About Infertility in CF; It Wasn’t a Doctor – In a follow up to an earlier blog post (which we shared on July 6th), Gunnar Esiason touches several important issues including the benefits – and dangers – of the internet as an information source.
07/11/2021 – My Journey as an Athlete With CF – Persistence is an important attribute for life with CF.
07/12/2021 – Education Day Registration Open – With less than a month to go to “Adapting to the Evolution of Care,” our 2021 Education Day program, we have opened the registration to the event.
07/13/2021 – Study Shows How Children Struggle and Adjust When Sibling Has CF – Cystic fibrosis affects everyone in the family. This study looked at the impact on siblings.