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CFFC Facebook Posts – June 2017 – Part 2

For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of June 2017.

06/16/2017Opportunity to Provide Input – Adults in the Rochester area CF community now have a chance to share their observations and suggestions with the CF Center through an independent study. We encourage you to participate.

6/17/2017 – Mul-1867 Shows Strength Against Drug-Resistant Bacteria in Preclinical-Trial Study – Help may be on the way to fight drug resistant strains that afflict CF lungs. [NOTE: This link is no longer working properly.]

06/18/2017Cystic Fibrosis Around the World: Macedonia – Gunnar’s tour returns to Europe.

06/19/2017Elina’s Lab – a look at Cystic Fibrosis lungs – Out of the mouth of babes. This young lady has an interesting demonstration of the difficulty in clearing bacteria from CF lungs.

06/21/2017How Cystic Fibrosis Affects the Lungs – CFF has produced a series of videos about CF treatments. The first, which describes how CF affects the lungs, may be old news to the CF community but may useful in educating family and friends.

06/22/2017Living with CF Golf Tournament – It’s not too early to sign up for a fun morning of golf while helping the local CF community

06/23/2017Senate Health Care Bill Fails to Adequately Protect People with Cystic Fibrosis – CF Foundation’s take on the health care legislation pending in the US Senate.

06/24/2017Using My Voice to Help Improve Lung Transplantation – The story of a woman who turned her bad experiences into an effort to help others.

06/25/2017 – Cystic Fibrosis Around the World: U.S. Virgin Islands – Gunnar’s CF tour heads to the Caribbean. Can you imagine being the only person with CF in your home country? And having to travel 1,700 mile to clinic?

06/26/2017 – Bacteria from cystic fibrosis patient could help thwart antibiotic-resistant TB – In a twist of fate, CF produces bacteria that may help fight other lung disease.

06/27/2017Why Little Moments Matter When It Comes to CF Care – We may look for the next big thing, but don’t overlook the small victories.

06/28/2017My Cystic Fibrosis Diet – Compare your eating routine to Gunnar’s menu.

06/29/2017Weighing the Benefits and Risks of a Lung Transplant – With advances in techniques and medicines, lung transplantation is getting more attention in the adult CF community. This article article provides some solid information that reminds us that the decision to pursue this option (like everything else in CF) is a complex process.

06/30/2017Drug combination improves lung function within 15 days of treatment for children with cystic fibrosis – Lumacaftor and ivacaftor were first tested with adults. This study showed significant benefits for a younger population.


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