CFFC Facebook Posts – June 2020 – Part 2
06/16/2020 – Mucus breakthrough could help patients breathe easy – Basic science is the first step on the path to new treatments.
06/17/2020 – My Experience With Telehealth – This blogger’s telehealth experience highlighted two characteristics that are always important: self-advocacy and awareness to what your body is telling you.
06/18/2020 – Second-hand Smoke Affects Metabolism in Infants and Children with CF, Study Finds – This study emphasizes the importance of keeping children with CF out of environments with cigarette smoke.
06/19/2020 – Mask Wearing: The Dumbest Binary Political Issue Out There – Science,m not politics, define the benefits that make masks worth the “inconvenience.”
06/20/2020 – Faces of a Clinical Trial – Jenna Coombs – Another entry in Cystic Fibrosis Canada’s ongoing series of personal experiences with clinical trials.
06/21/2020 – CFRD is the Cloud in My Trikafta Silver Lining – Perfect solutions are hard to come by.
06/22/2020 – How I Regained My Independence During the Pandemic – Despite a lifetime being alert to possible infection, coming out of the height of the pandemic adds heightened awareness.
06/23/2020 – Living with CF: A Partner’s Perspective – This story from the partner of a person living with CF shows the progression of understanding and adaptation.
06/24/2020 – What I’ve Learned From 11 CF Care Centers in 21 Years – You can learn many things through comparisons.
06/25/2020 – Face masks critical in preventing spread of COVID-19 – Another study that proves what you already know; however, this information needs to get out to the broader population – and extended to other situations like flu season, medical offices, etc.
06/26/2020 – Survey Opportunity – CF Care During COVID-19 – A team at the University of Arizona has produced a survey to gather information on the impact that COVID-19 has had on CF medications and telehealth.
06/27/2020 – Finding Fate in the Fallout – A story of recovery through rediscovery.
06/28/2020 – Being Black in the CF Community – A story of dual isolation – “a minority group within a minority group.”
06/29/2020 – Healthy Volunteers Do Well in AR-501 Trial for Chronic Lung Infections – Two interesting pieces in this report. One, a potential inhaler to fight chronic infection is on the horizon. Two, there is amazing science behind the use of non-antibacterial element to disrupt microbe functioning.