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CFFC Facebook Posts – March 2017 – Part 2

For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of March 2017.

03/16/2017Cystic Fibrosis Survival Rates in the United States vs. Canada – Gunnar’s take on the study we posted on Tuesday.

03/17/2017Clinical Trial Alerts – March 2017 – A second update from CFF for the month of March.

03/18/2017Understanding the Differences in Survival Between Canadians and Americans With CF – The Foundation’s statement regarding the study showing life expectancy differences between the US and Canada. (see posts on 3/14 and 3/16)

03/19/2017Vertex Acquiring Cystic Fibrosis Treatment CTP-656 from Concert Pharmaceuticals – Upside: consolidation of research into CF treatments. Downside(?): concentration of CF pharmaceuticals in a single company.

03/20/2017Your Pain Is Not Like Mine – An insightful story on one aspects of dealing with grief.

03/21/20176 Remarkable Things to Know About People Living With a Chronic Illness – A list with which you can most likely identify, but you might want to share this with acquaintances rather than explaining your experience.

03/22/2017“A Little Blood Makes a Big Cloud” – Gunnar talks about a frequent occurrence in the world of CF – a medical episode that disrupts your plans. [Advisory: he uses some coarse language.]

03/23/2017Two months to go! – CF Education Night is just two months away. Please complete our survey to aid our planning – including selection of discussion topics.

03/24/2017Saying Goodbye to Pediatric CF Care and Hello to Adult CF Care – Fortunately, the issues surrounding the transition from pediatric to adult care is now a common occurrence.

03/25/2017Night time routine with a chronic illness – Lauren Rowe uses humor to present the challenges of daily routines to deal with CF.

03/26/2017Reduced Diversity in Gut Bacteria Worsens as CF Lung Function Declines, Study Shows – Does this fall under the heading of “too much of a good thing?” Maintaining bacteria necessary for digestion while treating lung infections is just one more challenge for those living with CF.

03/27/2017Cystic Fibrosis Step-by-Step: Building a Treatment Routine – It may seem like common sense, but it never hurts to remind ourselves of the obvious.

03/28/2017Updates From a School Nurse With Three Students With CF in One School – As they used to say on TV’s The A Team, “I love it when a plan comes together.”

03/29/2017Sisters living with Cystic Fibrosis – This video (which is 29 minutes long) doesn’t present anything new, but it is a good look into life with CF (with pleasant accents).

03/30/2017Using Virus May Be Way to Fight Resistant Bacterial Lung Infections, Study Reports – Sometimes, getting a virus can be a good thing.

03/31/2017Clinical Trial Alerts – March 2017 – A third update from CFF for the month of March.


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