CFFC Facebook Posts – March 2021 – Part 1
03/01/2021 – What Will the Return to Normal Be Like After the Pandemic? – This blogger deals with the question we all probably have.
03/02/2021 – Luke’s story: balancing challenges of COVID-19 and finding perspective – Fortunately – and unfortunately – a life with CF teaches you to adapt to the circumstances you encounter.
03/03/2021 – Girls With CF Need Reproductive Counseling, Study Asserts – The range of specialties that comprise the CF care team needs to expand as new treatments change the expectations of life with CF.
03/04/2021 – How bacteria defeat drugs that fight cystic fibrosis – Understanding the origins of protective films may lead to the development of countermeasures that will improve the effectiveness of antibacterial treatments.
03/05/2021 – What Will the Return to Normal Be Like After the Pandemic? – This question is on everyone’s mind. Compare this blogger’s answer with yours.
03/06/2021 – A storm is coming! – Although this trial will take place in the UK, the results will be of interest to everyone using Trikafta. [NOTE: In Europe, Trikafta is marketed under the name Kaftrio.]
03/07/2021 – The right ‘5-a-day’ mix is 2 fruit and 3 vegetable servings for longer life – Okay parents. Now, when you “instruct” your kids to eat their fruits and vegetables, you can follow up with “you’ll live longer.”
03/08/2021 – How I Got My Life Back – If you wondered what happened to other hospital procedures during the pandemic, this bloggers story tells you that essential surgeries continued.
03/09/2021 – Help fight for the Adult CF Program in New York – You can add your voice to the call to reinstate NY’s program to help people living with CF obtain health insurance.
03/10/2021 – P. aeruginosa Resistance May Be Measure of Ability to Hijack CF Mucus – Once again, basic science may lead to improved treatments for resistant bacteria.
03/11/2021 – Advice for New Parents of a Child With CF – An infant diagnosis of CF is not as frightening as it was 30 years ago; however, an unguided internet search is not the best way to learn about life with CF. Building a network with parents facing the same challenges offers long-lasting support.
03/12/2021 – Surveys Play a Critical Role in Improving the Patient Experience – Here’s some encouragement to participate in surveys from someone who initially saw little value in them.
03/13/2021 – What It’s Like to Have CF in Pakistan – If you feel that CF isolates you in the US, imagine disconnect in a country that stigmatizes genetic disease.
03/14/2021 – Analysis of GI Tract Finds High CFTR Gene Activity in Small Intestine – Some more basic research that could lead to answers about digestion and nutrient absorption. Sad news is that, unlike lungs, mouse models won’t help with intestinal research.
03/15/2021 – A very normal mother – Although every day is mother’s day, the UK officially celebrates the idea on March 14th. Hence, this lovely story from Cystic Fibrosis Trust.
03/16/2021 – A Walking Miracle! Brianna Collichio Defies All Odds – American Idol 2021 – This is probably old news to everyone in our community, but it can’t be repeated too often. Brianna has come a long way from singing the National Anthem at CFFC’s 3-on-3 basketball tournament; including a stop to sing the anthem at NY Jets stadium. You are an inspiration, Brianna!