CFFC Facebook Posts – March 2022 – Part 2
03/16/2022 – Advocate for CF Assistance – Cystic Fibrosis Foundation has created a portal to automate communication with your State representatives in support of the Adult Cystic Fibrosis Assistance Program. Add your voice to reinstate this program in the next state budget.
03/17/2022 – Losing My CF Identity – This blogger explains the psychological changes that go along with the physical changes produced by Trikafta.
03/18/2022 – Flares, Poorer Lung Health Can Follow Becoming a Parent With CF – An increase in parenthood is one of the “side effects” of improvements in CF treatments. This study looks at the impact of parenthood on health and notes another positive aspect of CFTR modulators.
03/19/2022 – What we learned at the UK Cystic Fibrosis Clinical Trials Conference – Researchers are looking for new approaches to clinical to reflect the changes brought on by new treatments and technology.
03/20/2022 – Year Two in the Pandemic – Despite the title, this blog is about communicating with your support network.
03/21/2022 – Getting a Port Taught Me the Importance of Autonomy – Transitioning from adolescent to adult means making more decisions for yourself. It’s an important step in your health care.
03/22/2022 – The Liberating Feeling of Cycling Off an Antibiotic – This blog by Gunnar Esiason has some good information for CF parents as well as another shout out on the benefits of Trikafta.
03/23/2022 – Using artificial sputum to understand CF lung infections – While no specific treatment guidelines came out of this research, there is value in the concept of testing in a realistic environment outside the body.
03/24/2022 – How I’ve Learned to Accept My Body and Its CF Battle Scars – Embracing your body image can be a challenge with the visible effects of CF and treatments.
03/25/2022 – Bacteria Boosts Anti-fungal Medicine’s Killing Power in CF Study – Individuals living with CF often deal with simultaneous infections. This study looked at the impact multiple infections have on treatment efficacy.
03/26/2022 – “Having CF makes me unique!”: 5 things I wish you knew about CF – Kids say the darnedest things. Here’s life with CF from a child’s perspective.
03/27/2022 – More Than 160 Advocates Raise Their Voices for PASTEUR Act During March on the Hill – Cystic Fibrosis Foundation annually organizes an event to promote legislation that benefits the CF community.
03/28/2022 – Metabolites Associated With Lower Airway Infection and Inflammation – Researchers continue to look for clues to improve diagnosis and treatment.
03/29/2022 – Redefining Myself After Lung Transplant – There’s a saying that the solution to the problem changes the problem. Transplantation matches up with that saying.