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CFFC Facebook Posts – November 2016 – Part 2

For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of November 2016.

11/16/2016A Message to the Community Following the Election – The future of health insurance was a key theme during the presidential campaign. The CF Foundation has an answer to a common question” “What now?”

11/17/2016Encouraging Phase 1 Trial Results of Anti-inflammatory Oral Treatment for CF Published – Some more encouraging news from the research arena.

11/18/2016I Want Us to Stop Using the ‘Life Expectancy’ Statistic – An interesting perspective.

11/19/2016Basic Exercises – Do you need a push to get into an exercise regimen? Maybe these videos will help.

11/20/2016Our Pharmacist: My Son’s Unofficial Care Team Member – Hope you all have a pharmacy like the one described in this Community Blog from CFF.

11/21/2016Therapy Targeting CF Mutation Appears to Restore CFTR Gene in Homozygous Patients in Study – Promising news for those with the most common CFTR mutation, but the results do not apply to heterozygous individuals.

11/22/2016Nutrition and Your Digestive System – A new comprehensive resource on nutrition has been added to the CFFC web site.

11/23/2016Making it Matter Ep. #14 – Advocacy and Other Things – While the topics covered in this podcast may interest you, it is equally interesting to listen in on two adults dealing with CF in their own way.

11/24/2016 – Happy Thanksgiving!! In the spirit of the day, try to put aside your concerns and challenges and devote your time to appreciate your accomplishments and look forward to the promises of the future. [And remember that those sweet potatoes are a super food.]

11/25/2016 Beware of Calls From Insurance Brokers – It’s unfortunate that there are miscreants who prey on innocent people. It’s fortunate that we have resources to help out.

11/26/2016Mucociliary Clearance, Difficult in CF, Might Be Possible by Blocking Mucus Absorption – Wouldn’t be nice to be able to clear all that nasty mucus?

11/27/2016What’s It Like to Be a Tween With Cystic Fibrosis? – Interview with a very mature 11 year old Sarah.

11/28/2016What We’re Thankful For – In the spirit of the season, CFF asked the CF community to tell us about the things for which they are thankful.

11/29/2016Palliative Care Considerably Eases Burden of Serious Illnesses Like CF, Study Finds – Dr. Robert Horowitz, formerly the director of the Adult CF Center, is the Interim Chief of the URMC Palliative Division.

11/30/2016What is Indrepta? – Here’s an example that food intake serves purposes beyond nutrition. [NOTE: Providing this information is not intended as an endorsement of the product.]


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