CFFC Facebook Posts – September 2018 – Part 1
For those who do not visit Facebook, here are the posts to the CFFC page for the first half of September.
09/01/2018 – Darcy’s Blog: Cystic Fibrosis as the New Normal – Some interesting insight from the “significant other” point of view.
09/02/2018 – MRSA Difficult to Eradicate, Even With Multimodal Antibiotics, CF Study Finds – This study is a reminder that understanding is advanced by research trials even when the desired results are not achieved.
09/03/2018 – Dealing With Body Issues as a Teen With CF – Just one more aspect of growing up with CF.
09/04/2018 – New Research on Pancreatic Ducts’ Formation Offers New Insights for CF – Research into how the body works (and how it is formed) provides the basis for discovering treatments to correct the defects produced by CF.
09/05/2018 – Cystic Fibrosis is Still Killing People Before They Turn 30 – Gunnar deals with a scary, but important, truth that can be overshadowed by success stories.
09/06/2018 – A Guide for CF at School – A new resource from Ireland that may be helpful here.
09/07/2018 – Coping With the Uncertainties of My Disease – An all to familiar story about finding a new “normal.”
09/08/2018 – Vertex, Genomics Team Up in Quest for Genetics-based, Precision Medicines – An interesting combination of sciences geared toward treatments customized to an individuals genetics. The collaboration across the Atlantic Ocean is noteworthy as well.
09/09/2018 – Your CF Morning Routine – How do these experiences match up with your morning routine?
09/10/2018 – 5 Things I’d Tell a Parent of a Child Newly Diagnosed With CF – Parents can advise parents, but it’s even better when “children” advise parents.
09/11/2018 – Vertex and Treating CF: 3 Disease-modifying Therapies Make Leap from Lab to Patients – Second in a series on the development of Vertex CF treatments.
09/12/2018 – How Many CF Clinics Have You Been To? The Anti-Vaxxers Are after Me! NFL Week 1 Recap – Two interesting points about CF with a bonus for those who like football.
09/13/2018 – The 4 Deaths that Mold Me – We can still draw inspiration for those who have left this life.
09/14/2018 – Your Stories of Random Acts of Kindness – Feel free to add your own story of random acts of kindness in a comment to this post.
09/15/2018 – Mutations Linked to Severe CF Seen to Affect Health of Heart’s Left Ventricle in Study – As if you wanted to know that CF impacts even more organs….