CFFC Facebook Posts – September 2020 – Part 1
09/01/2020 – Preventing infection, facilitating healing: New biomaterials from spider silk – Science is a fascinating thing; especially when benefits come from unusual sources. [BTW: Think twice before you kill a spider.]
09/02/2020 – Transplant Anniversaries Acknowledge Trauma and Triumph – Transplantation affects your emotional well-being as well as your physical well being.
09/03/2020 – Two Years Ago This Week, I Decided My Life Needed to Change – Gunnar Esiason’s story suggests that this time of disruption may be an opportunity to consider where you go from here.
09/04/2020 – Choosing Kindness Over Anger – This blogger tells us that attitude matters.
09/05/2020 – Vertex Seeks to Expand FDA Approval of CFTR Modulators to Include More Mutations – Extending the the approved use of existing CFTR modulators to more mutations is consistent with the “no one left behind” strategy for CF treatments.
09/06/2020 – New Technology Could Improve Detection of Biomarkers for CF, Other Diseases – CF research has benefited from findings relating to other diseases. This article points to a situation where Findings intended for CF may benefit research on COVID19.
09/07/2020 – Research survey for rare disease patients and their families about impacts of COVID-19 – Research funded by NIH is seeking to document the impact COVID-19 is having on individuals with rare disease (which includes CF).
09/08/2020 – CF Prepared Me for Isolation, But Not Homeschooling – As schools reopen in NY, this blog may resonate with you.
09/09/2020 – Exploiting the weak spots in M abscessus to design new antibiotics – This article describes an exciting development in the battle against resistant bacteria.
09/10/2020 – Emergency Fund – CFFC can help meet immediate needs when you run short of money. Check out the details of our Emergency Fund program for families served by the Rochester CF Center.
09/11/2020 – Savara Closing Trial of Molgradex in Treating NTM Lung Infections in CF Patients – With all of the attention given to research successes, it is important to recognize that some proposals do not work out. Interestingly, the benefits of Trikafta played a role in ending the study.
09/12/2020 – How Being a Black Woman Shaped My CF Journey – This blog touches on the ramification of being in a rare demographic for a rare disease.
09/13/2020 – How to Keep Your Growth Game Strong – The author provides strategies for dealing with the CF cha-cha (five steps forward, three steps back).
09/14/2020 – Survey Opportunity: COVID-19 Vaccine – Share your views on the implications of a COVID-19 vaccine.
09/15/2020 – Putting Convenience Before the Vulnerable – This blogger is expressing concerns you may have.