CFFC Facebook Posts – September 2021 – Part 2
09/16/2021 – Inhaled drug could treat rare cystic fibrosis mutations – This article, which comes from Israel, describes the early stages of research on an inhaled approach to correcting the CFTR protein.
09/17/2021 – Dr Keith Brownlee: “We won’t stop until everyone can access life-saving drugs” – Like Cystic Fibrosis Foundation, UK’s Cystic Fibrosis Trust is committed to finding treatments like CFTR modulators for all mutations and conditions. Interestingly, this article includes a link to a fact sheet on the “emotional and social impact of Kaftrio” [Trikafta].
09/18/2021 – Bonding Over Breathing – The story of finding new friends wraps around the story of a person living with CF mastering his challenge.
09/20/2021 – Don’t Discourage Your Hurting Friend’s Faith – This blogger explores the evolution of faith when dealing with chronic illness.
09/23/2021 – How Mycobacterium abscessus infections are passed on: Putting the pieces together – Using bacterial DNA, scientist have discovered the means by which Mycobacterium abscessus spread around the world – and outside the CF community.
09/25/2021 – Thoughts on Venture Philanthropy: A Patient-Centered Investment Thesis – Gunnar Esiason shares part of a thesis from his business school days which you can trace to the operation of Cystic Fibrosis Foundation.
09/26/2021 – Ultrasounds May Help Diagnose Pancreatic Insufficiency in Children – Non-invasive diagnostics are are great tools, especially with children.
09/28/2021 – Luke Peters reflects on his transplant journey – This reflection concludes with some recommendations for individuals facing the question of transplantation.
09/29/2021 – Thoughts on Fatherhood: The Single Most Important Goal in my Life – Gunnar Esiason points out that, like everything else, CF puts a special twist on the notion of being a parent.
09/30/2021 – Trusting a Future Where I Do More Than Just Survive – Trikafta affects the emotional, as well as the physical, side of life with CF.