Three posts were made to the CFFC Facebook page during the week of 6/14-20/2026.
06/14/2026 – How medicines are funded in Australia and why it takes so long – This article describes the processes involved in making treatments available (and affordable) to the CF community. The details are specific to Australia but there are parallels in the US.
06/17/2026 – 2025 Cystic Fibrosis Foundation Patient Registry Highlights – As usual, the Cystic Fibrosis Foundation 2025 annual report on registry data contains some interesting insights. We know about the increase in the median predicted survival age; the interesting perspective is that the gender gap in this statistic has closed. The article includes a link to download the complete report.
06/20/2026 – CFRD patients successfully manage high treatment burden: Study – CFRD treatments add complexity to the already heavy burden of CF care. This study showed that people with CF were able to manage the additional demands and maintain their care level equal to those without CFRD.