Six posts were made to the CFFC Facebook page during the week of 6/21-27/2026.
06/21/2026 – “I don’t have a community with people with CF my age, who can’t take modulators”: Abi’s story – This young woman has had more than her share of hurdles, but she has shown her determination in making the most of her life.
06/22/2026 – Community Update: Infection Research – The advances in CF care we are experiencing today are the result of research in many areas. To get the latest news on current research, tune in to the webinar presented by the Cystic Fibrosis Foundation. This article contains a registration link.
06/23/2026 – Young Cystic Fibrosis Patient Thriving Thanks to His Family and Team of Caregivers – This story demonstrates the ups and downs in CF – not just CF itself but also finding an effective care team.
06/24/2026 – Think human anatomy is finished? Scientists say think again – Here is another venture outside the strictly CF world but the thrust of this article strikes a familiar chord. Just like there is no universal anatomy, there is no one presentation of CF. And, perhaps, the variations in anatomy influences the presentation of CF.
06/25/2026 – Reflections from the European CF Society (ECFS) conference: “the commitment of people to make a difference is so impressive” – There are some good messages from the European CF conference. The key is in the first item mentioned: “Effective treatments for all.”
06/27/2026 – “I finally found something that worked. Now I’m waiting again.” – While this story ends on the battle in Canada to obtain approval for Alyftrek, there are familiar aspects: late diagnosis, the wonders of Trikafta, the side effects of Trikafta and the search for a viable option.