CFFC Facebook Posts Week of 7/19

Six posts were made to the CFFC Facebook page during the week of 7/19-25/2026.

07/20/2026New model may help predict weight changes in children on CF treatment – Inability to gain weight can be a problem for children with CF. The introduction of CFTR modulators introduced a new problem of excessive weight gain. This study offers a technique that could help caregivers provide better management of weight.

07/21/2026 – Family Day 2026 – We’re getting close to Family Day 2026 – Sunday, August 9th at Wickham Farms. No weather forecast for that date yet, but we can all have fun regardless of the weather. Follow the link to get full details and an online registration form. Please sign up by 8/2 so we can finalize arrangements with Wickham Farms.

07/22/2026CF patients, doctors comfortable with spacing out clinic visits – Survey results indicate that the advancements in CF treatments warrant extending the time between clinic visits. The survey did not cover related topics like virtual visits and remote monitoring.

07/23/2026CFFC 2025-26 Annual Report – The results are in for CFFC’s 2025-26 fiscal year. This summary also includes the formal financial report.

07/24/2026 Scientists revive a powerful antibiotic that superbugs had defeated – Infections, especially drug-resistant infections, continue to be a significant concern for people living with CF. In addition to research seeking new antibiotics, this article describes an effort to update an existing antibiotic to overcome resistance.

07/25/2026Living with CF and pancreatitis: Izzie’s story – People unfamiliar with the complexity of CF may confuse “pancreatic insufficiency” and “pancreatitis.” The difference is painfully clear to individuals who suffer from pancreatitis. Izzie’s story provides a good explanation of the condition and its effect on the people who suffer from it.