Six posts were made to the CFFC Facebook page during the week of 7/5-11/2026.
07/05/2026 – Many CF symptoms worsen during menstruation despite treatment – CF is experienced differently by each individual. This research demonstrated that women living with CF have complexities which are not associated with men.
07/07/2026 – Building a Career While Living with CF – Finding work/life balance is a common challenge. Like everything else, CF complicates the process. This blogger reimagined her career to find a better balance.
07/08/2026 – CF Foundation Commits Up to $13 Million in Additional Funding to Advance Potential Splicing Mutation Treatment – The Cystic Fibrosis Foundation continues its support of the search for better treatments.
07/09/2026 – Family Day – One Month Away – Summer is moving along and, now, we are one month away from CFFC Family Day at Wickham Farms on Sunday, August 9th. We’d love to host everyone from the Rochester/Finger Lakes CF community. Follow the link for details and online registration.
07/10/2026 – Bringing South Asian voices to CF LIVE: How patient feedback inspired a new CF LIVE – The different CFTR mutations (as well as other genetic characteristics) create a wide variety of physical aspects of CF. The UK’s Cystic Fibrosis Trust has also recognized that an individual’s cultural experience shapes their life with CF. This article announces an online program that will explore the question: “Is CF different in South Asian families?” The program will be presented in the context of the UK medical environment, but cultural issues cross national boundaries.
07/11/2026 – The Reality of Being an Athlete with Cystic Fibrosis – The core element of this blog is athletics but there are also messages about dealing with the misunderstanding of others and the challenge of overcoming the limits others may try to place on you.