Six posts were made to the CFFC Facebook page during the week of 8/16-22/2026.
08/16/2026 – ‘CF is not known enough in the world, and it’s certainly not known in motorsport, so I’ll keep working hard to raise awareness.’ – This young man has a positive outlook on his life with CF and has plans to educate “the world” about CF.
08/18/2026 – Reproductive health guidance for the cystic fibrosis community: a Cystic Fibrosis Foundation Position Paper – The advances in CF treatments have extended life expectancies which has also expanded the issues that need to be addressed by people living with CF. This article discusses one of those issues: reproductive health. Access through this link is limited to a summary of the report.
08/19/2026 – CF in Egypt: does it exist there? Doctors there said “no” until a University of Michigan doctor proved them wrong – It took some time but we now recognize that CF is not exclusively a Caucasian disease. This story relates the effort required convince the medical community in Egypt that CF exists in their population.
08/20/2026 – Japanese scientists use tiny silver particles to make DNA assembly up to 5x more efficient – Gene therapy holds the promise of a “cure” for cystic fibrosis; however, several technical challenges have delayed the delivery of that promise. This report describes an approach developed in Japan that could dramatically improve the success of gene therapy.
08/21/2026 – Why We Need More Conversations About CF and Postpartum Health – Improvements in treatments have allowed people living with CF to achieve things that were previously only dreams. Yet, those achievements are complicated by CF.
08/22/2026 – Annual CF Insights Survey – From the Cystic Fibrosis Foundation: “The CF Foundation wants to hear from you. The new Annual CF Insights Survey gives you the space to share your big picture—what’s working, what’s hard, and what would make a real difference for the CF community. The survey is completely anonymous and takes about 10-15 minutes to complete. Your perspective helps the CF Foundation, care teams, and researchers better respond to the evolving needs of the CF community, grounded in your real experiences and not assumptions.”