Q. When is Education Day?
A. The event will be held on Wednesday, August 4th. The program will begin at 6:30 with introductions followed by the keynote presentation by Gunnar and Darcy Esiason. We will take a break to hear from our sponsors at 7:30. Darcy and Gunnar will be back at 8:00 to answer your questions with a wrap up by 9:00.
Q. What is the theme of this year’s program?
A. We have titled this year’s program as “Adapting to the Evolution of Care.” The simple title covers a lot of ground. The evolution in CF care includes new treatments (like Trikafta), resulting changes in life expectations, changes in an individual’s support system (like move from parent to self to significant other), and changes in the care team (like moving between centers or turnover in center staff). Cutting across all these aspects are the concepts of advocacy and mental health.
Q. Where will Education Day be held?
A. Wherever you are comfortable. Our 2021 edition of Education Day will be a virtual event presented using Zoom Webinar. Once you are registered, you will get a link that you can access from anywhere you have an internet connection.
Q. How do I register for Education Day?
A. Simply follow this link: https://zoom.us/webinar/register/WN_7e4E9Ll3TJC6hCc6pH1z7A. You will be asked to provide five pieces of information: first name, last name, email address, zip code and your relationship to CF. After completing the registration, you will receive an email with instructions for connecting to the event. You will also receive a reminder email the day before the event.
NOTE: Your registration confirmation is your ticket to participate, so you must register in order to access the webinar. If additional people in your household want to participate on their own device, they should register separately. Registration will remain open right up to the start of the webinar.
Q. How does a Zoom Webinar work?
A. As an attendee, joining the webinar is pretty much like watching a TV show where you can see and hear the presenters, but they can’t see or hear you. There are, however, a couple of differences. First, the host and panelists will be able to see who has logged in to the program.
The more important difference is that you will be able to submit questions to the panelists through the Webinar Q&A feature. You will be able to see all of the questions submitted and any answers entered in the Q&A segment. If you want to ask your question directly to the panelists, make a note of that in your Q&A entry. The host can then give you access to be heard (and seen) by all participants so make sure your audio and video are turned on.
Q. Do I need special software to participate?
A. If you have never used a Zoom product before, you will be asked to download a small program when you log in to the Webinar. It will make sense to log in 10 or 15 minutes before the program begins to make sure you are properly connected and don’t miss any of the program.
Q. What if I miss the event?
A. We will be recording the entire program “in the cloud.” We will be distributing a link to the recording so those who were unable to attend can benefit from the keynote message and the Q&A. You may even want to review the program if you did attend.