We will be spending the evening of June 4, 2020 with Gunnar Esiason and Darcy Cunningham. They will share their perspectives on relevant issues in both the keynote presentation and the discussion groups.
To acknowledge Gunnar’s concern about infection control, individuals with CF should not attend the event. We are still investigating options to make the presentation and discussions available to those who cannot participate in person.
We have designed a program that offers a mix of socializing and information exchange. Here’s the agenda:
6:00 PM – Welcome – create or renew acquaintances while enjoying complementary snacks and beverages as well as learning the latest news from our sponsors
6:30 PM– Keynote – Gunnar and Darcy will present a topic that will be announced later
7:30 PM – Break – a second opportunity to enjoy the refreshments and mingle with the attendees and sponsors
8:00 PM– Two concurrent discussion groups
Learning to advocate for your care – Gunnar will guide a discussion on building the capacity within the support team to advocate for your needs
Navigating the emotion of life with CF – Darcy will lead a discussion on the less-recognized aspects of living with CF
9:00 PM – End of program
The Pittsford Hilton Garden Inn, 800 Pittsford-Victor Road, is located near the I490 Bushnells Basin exit.