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SUMMARY:Life Without Modulators Small Group Discussion
DESCRIPTION:The Cystic Fibrosis Foundation has issued the following invitation to “Life Without Modulators Small Group Discussion.” \nWhile many are celebrating the progression of CFTR modulators (Trikafta®\, Symdeko®\, Kalydeco® and Orkambi®)\, others are waiting for the next highly effective treatment. To support the members of the CF community who are not benefiting from a modulator\, the CF Foundation is hosting a small group discussion  to share experiences around Life Without Modulators. \nThis discussion is for: \n\nAdults with CF who are not eligible for or not benefiting from a CFTR modulator\nParents of children with CF who are not eligible for or not benefiting from a CFTR modulator*.\n\n* Please note\, this discussion is not intended for parents of children with CF who are ineligible for CFTR modulators  due to age restrictions. \nDiscussions will be peer-led with CF Foundation staff present to assist with technology. Please note this is not a support group facilitated by a mental health professional. \nRegister for Small Group Discussion \nBy registering\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. \nPlease also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. \nFor any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/life-without-modulators-small-group-discussion-2/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
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