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X-WR-CALDESC:Events for Cystic Fibrosis Family Connection
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250606T173000
DTEND;TZID=America/New_York:20250606T223000
DTSTAMP:20260512T144203
CREATED:20250408T140418Z
LAST-MODIFIED:20250408T140418Z
UID:12365-1749231000-1749249000@cffamilyconnection.org
SUMMARY:ResearchCon 2025
DESCRIPTION:The announcement from the Cystic Fibrosis Foundation: \nJoin us at ResearchCon May 6! Everyone in the cystic fibrosis community is invited to this one-day\, virtual event to discuss the latest in CF-related science\, research\, clinical care\, and the lived experience alongside others living with and studying the disease. \nThis event will cover critical topics directly shaped by your feedback\, including gastrointestinal complications\, advancements in CF-related nutrition\, common mental health challenges\, and key differences between Trikafta and Alyftrek. \nPlus\, hear leading CF clinicians and researchers discussing topics like prenatal Trikafta use in CF carriers\, current clinical trials\, and the current state of gene therapy research. \nDuring the event\, you will also have the opportunity to ask deeper questions and interact directly with leading clinicians and researchers shaping the future of CF treatment and care. We can’t wait to see you there! \nRegister for ResearchCon \nThe registration page contains descriptions of the sessions and a detailed schedule.
URL:https://cffamilyconnection.org/event/researchcon-2025/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250325T190000
DTEND;TZID=America/New_York:20250325T200000
DTSTAMP:20260512T144203
CREATED:20250114T021100Z
LAST-MODIFIED:20250114T021117Z
UID:12206-1742929200-1742932800@cffamilyconnection.org
SUMMARY:CF Circle - Living Longer With CF
DESCRIPTION:Description from Cystic Fibrosis Foundation: \nThis small group discussion is for adults with CF 40+ and offers a supportive environment to connect with others who share similar experiences. Previous topic discussions have ranged from navigating changes in health to work transitions and redefining your expectations of aging. Join the conversation to share insights\, foster connections\, and explore what aging with CF means for you. \nBreakout groups will be divided by age in the following way: 40-49\, 50-59\, 60-69\, 70+ \nIf you have any trouble registering or have any questions\, please contact Rachel at rhershberg@cff.org \nRegister \nLearn more about CF Circles here.
URL:https://cffamilyconnection.org/event/cf-circle-living-longer-with-cf/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250227T180000
DTEND;TZID=America/New_York:20250227T210000
DTSTAMP:20260512T144203
CREATED:20250114T224646Z
LAST-MODIFIED:20250114T224646Z
UID:12228-1740679200-1740690000@cffamilyconnection.org
SUMMARY:WNYCFF Rochester Annual Meeting 2025
DESCRIPTION:Here’s the announcement from the Western New York Chapter of the Cystic Fibrosis Foundation: \nCelebrate the moment with us at the Western New York Chapter of the Cystic Fibrosis Foundation’s Buffalo and Rochester annual meetings\, which will be held on Thursday\, February 27\, 2025 in Rochester and Thursday\, March 6\, 2025 in Buffalo.\n\nDuring this annual gathering\, we will reflect on the extraordinary achievements we’ve made as a community in 2024 and celebrate our dedicated volunteers and sponsors who supported us in our mission to cure cystic fibrosis.\n\nREGISTER\n\nFor more information\, contact Sara Nelson (snelson@cff.org)
URL:https://cffamilyconnection.org/event/wnycff-rochester-annual-meeting-2025/
LOCATION:Pane Vino on the Avenue\, 3400 Monroe Ave\, Rochester\, NY\, 14618\, United States
CATEGORIES:CF Foundation,Education
ORGANIZER;CN="CFF Western NY Chapter":MAILTO:pschwarzweller@cff.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250225T190000
DTEND;TZID=America/New_York:20250225T200000
DTSTAMP:20260512T144203
CREATED:20250114T020144Z
LAST-MODIFIED:20250114T020144Z
UID:12203-1740510000-1740513600@cffamilyconnection.org
SUMMARY:CF Circle - Sexual Health
DESCRIPTION:Description from Cystic Fibrosis Foundation:\n\nThis small group discussion is for adults with CF and offers a supportive environment to connect with others who share similar experiences. There is no set agenda in these groups\, but topics may include discussion of hormones\, incontinence and UTIs\, side effects of medication\, or menopause. Join the conversation to engage in meaningful discussions\, exchange insights\, and build connections with others in the CF community.\n\nIf you have any trouble registering or have any questions\, please contact Rachel at rhershberg@cff.org\n\nRegister\n\nLearn more about CF Circles here.
URL:https://cffamilyconnection.org/event/cf-circle-sexual-health/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250208T133000
DTEND;TZID=America/New_York:20250208T190000
DTSTAMP:20260512T144203
CREATED:20250125T023718Z
LAST-MODIFIED:20250125T023718Z
UID:12253-1739021400-1739041200@cffamilyconnection.org
SUMMARY:BreatheCon 2025 - Day 2
DESCRIPTION:From the Cystic Fibrosis Foundation: \nWhether you were diagnosed with cystic fibrosis at birth or recently received a diagnosis\, there’s a spot for you at BreatheCon! This two-day virtual experience offers opportunities to share stories and perspectives with people who truly “get it.” Attendees will have access to panels\, group chats\, and social events\, including a game night and karaoke. Register to join us February 7-8 to get to know and have fun with other adults living with CF!  \nSee the details of the event including registration: BreatheCon 2025
URL:https://cffamilyconnection.org/event/breathecon-2025-day-2/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250207T180000
DTEND;TZID=America/New_York:20250207T220000
DTSTAMP:20260512T144203
CREATED:20250125T023237Z
LAST-MODIFIED:20250125T023237Z
UID:12251-1738951200-1738965600@cffamilyconnection.org
SUMMARY:BreatheCon 2025 - Day 1
DESCRIPTION:From the Cystic Fibrosis Foundation: \nWhether you were diagnosed with cystic fibrosis at birth or recently received a diagnosis\, there’s a spot for you at BreatheCon! This two-day virtual experience offers opportunities to share stories and perspectives with people who truly “get it.” Attendees will have access to panels\, group chats\, and social events\, including a game night and karaoke. Register to join us February 7-8 to get to know and have fun with other adults living with CF!  \nSee the details of the event including registration: BreatheCon 2025
URL:https://cffamilyconnection.org/event/breathecon-2025-day-1/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250122T200000
DTEND;TZID=America/New_York:20250122T230000
DTSTAMP:20260512T144203
CREATED:20241220T224859Z
LAST-MODIFIED:20241220T224859Z
UID:12166-1737576000-1737586800@cffamilyconnection.org
SUMMARY:Cystic Fibrosis Foundation Annual Meeting
DESCRIPTION:The Cystic Fibrosis Foundation has extended the following invitation: \nJoin us for an inspiring conversation with Michael Boyle\, MD\, President and CEO\, and Irena Barisic\, Executive VP and Chief Operating & Financial Officer\, as they share the Foundation’s vision for 2025. \nAfter opening remarks\, leaders from across the Foundation will be on hand to answer your questions. This is your conversation\, so bring the questions that matter most to you. \nRegister today for this energizing community conversation! \nRESERVE YOUR SPOT TODAY
URL:https://cffamilyconnection.org/event/cystic-fibrosis-foundation-annual-meeting/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241112T190000
DTEND;TZID=America/New_York:20241112T210000
DTSTAMP:20260512T144203
CREATED:20241024T203740Z
LAST-MODIFIED:20241024T203740Z
UID:12047-1731438000-1731445200@cffamilyconnection.org
SUMMARY:NACFC 2024 Highlights Webinar
DESCRIPTION:From the Cystic Fibrosis Foundation: \nInterested in learning about the latest cystic fibrosis research and care highlights from the North American Cystic Fibrosis Conference (NACFC)? Register for our live webinar November 12 at 7 p.m. ET to hear key takeaways from this year’s conference and have an opportunity to ask the experts your questions. \nREGISTER \nResearchers and clinicians gather every year at the North American Cystic Fibrosis Conference to discuss the latest developments in cystic fibrosis research and care. We invite everyone to learn about these developments at the NACFC Highlights Webinar on November 12\, 7-8 p.m. ET. The event will include an option to listen to a live Spanish translation. We will talk about the latest research and care news from NACFC\, and CF researchers will answer your questions. \nCan’t attend live? Register and we will send you a recording after the event. \n[Investigadores y especialistas médicos se congregan cada año en la Conferencia de Fibrosis Quística de América del Norte (NACFC en inglés) para debatir los últimos avances en la investigación y la atención de la fibrosis quística. Invitamos a todos a aprender a informarse sobre estos avances en el seminario web de puntos destacados de la NACFC en el 12 de noviembre\, de 7 a 8 p.m.\, hora del este. El evento incluirá una opción para escuchar la interpretación en español. Hablaremos de las últimas novedades en investigación y atención de la NACFC\, y los investigadores de la FQ responderán sus preguntas. \n¿No puede asistir en vivo? Inscríbase y le enviaremos una grabación después del evento.]
URL:https://cffamilyconnection.org/event/nacfc-2024-highlights-webinar/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240501T180000
DTEND;TZID=America/New_York:20240501T180000
DTSTAMP:20260512T144203
CREATED:20240330T004450Z
LAST-MODIFIED:20240330T004528Z
UID:11236-1714586400-1714586400@cffamilyconnection.org
SUMMARY:ResearchCon 2024 - Day 2
DESCRIPTION:The invitation from the Cystic Fibrosis Foundation: \nYou are invited to join the 6th annual ResearchCon on April 30-May 1\, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of their loved ones and leads to feeling more connected to the CF community. \nResearchCon features information sessions\, roundtables\, and social opportunities like: \n\nSocial chat time with other parents of people with CF\nA genetics counselor\, researcher\, and community members presenting on the latest information on genetic therapies research followed by a Q&A\nA clinical trials research coordinator and community members sharing their expertise and experiences with clinical trials\n\nREGISTER HERE \nYou can check out the schedule and session options here: ResearchCon 2024 Schedule
URL:https://cffamilyconnection.org/event/researchcon-2024-day-2/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240430T180000
DTEND;TZID=America/New_York:20240430T220000
DTSTAMP:20260512T144203
CREATED:20240330T003614Z
LAST-MODIFIED:20240330T003825Z
UID:11226-1714500000-1714514400@cffamilyconnection.org
SUMMARY:ResearchCon 2024 - Day 1
DESCRIPTION:The invitation from the Cystic Fibrosis Foundation: \nYou are invited to join the 6th annual ResearchCon on April 30-May 1\, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of their loved ones and leads to feeling more connected to the CF community. \nResearchCon features information sessions\, roundtables\, and social opportunities like: \n\nSocial chat time with other parents of people with CF\nA genetics counselor\, researcher\, and community members presenting on the latest information on genetic therapies research followed by a Q&A\nA clinical trials research coordinator and community members sharing their expertise and experiences with clinical trials\n\nREGISTER HERE \nYou can check out the schedule and session options here:  ResearchCon 2024 Schedule
URL:https://cffamilyconnection.org/event/researchcon-2024-day-1/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240411T190000
DTEND;TZID=America/New_York:20240411T210000
DTSTAMP:20260512T144203
CREATED:20240319T002344Z
LAST-MODIFIED:20240319T002357Z
UID:11199-1712862000-1712869200@cffamilyconnection.org
SUMMARY:Small Group Discussion - Body Image
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. \n\nAdults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  \nIf you have a loved one with CF who could benefit from this discussion\, please forward this information to them. \n\nRegister for Small Group Discussion on Body Image \n\nDiscussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. \nBy registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. \nPlease also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. \nFor any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/small-group-discussion-body-image/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240306T190000
DTEND;TZID=America/New_York:20240306T210000
DTSTAMP:20260512T144203
CREATED:20240223T000745Z
LAST-MODIFIED:20240223T000745Z
UID:11120-1709751600-1709758800@cffamilyconnection.org
SUMMARY:Life Without Modulators Small Group Discussion
DESCRIPTION:The Cystic Fibrosis Foundation has issued the following invitation to “Life Without Modulators Small Group Discussion.” \nWhile many are celebrating the progression of CFTR modulators (Trikafta®\, Symdeko®\, Kalydeco® and Orkambi®)\, others are waiting for the next highly effective treatment. To support the members of the CF community who are not benefiting from a modulator\, the CF Foundation is hosting a small group discussion  to share experiences around Life Without Modulators. \nThis discussion is for: \n\nAdults with CF who are not eligible for or not benefiting from a CFTR modulator\nParents of children with CF who are not eligible for or not benefiting from a CFTR modulator*.\n\n* Please note\, this discussion is not intended for parents of children with CF who are ineligible for CFTR modulators  due to age restrictions. \nDiscussions will be peer-led with CF Foundation staff present to assist with technology. Please note this is not a support group facilitated by a mental health professional. \nRegister for Small Group Discussion \nBy registering\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. \nPlease also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. \nFor any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/life-without-modulators-small-group-discussion-2/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240210T133000
DTEND;TZID=America/New_York:20240210T181500
DTSTAMP:20260512T144203
CREATED:20240111T171106Z
LAST-MODIFIED:20240111T171106Z
UID:11059-1707571800-1707588900@cffamilyconnection.org
SUMMARY:BreatheCon 2024 - Day 2
DESCRIPTION:From the Cystic Fibrosis Foundation: \n\n\n\n\n\n\nOn Feb. 9 & 10\, 2024\, the Cystic Fibrosis Foundation will host BreatheCon\, a unique event for adults with cystic fibrosis to virtually gather with one another in a welcoming\, inclusive space where you can be your authentic self. No matter if you are seeking to learn from others\, share your CF journey\, or just want to socialize; all adults with CF are welcome to attend! \n* BreatheCon sessions on Friday\, February 9th\, will be accessible in Spanish. \nView the schedule and register here.
URL:https://cffamilyconnection.org/event/breathecon-2024-day-2/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240209T183000
DTEND;TZID=America/New_York:20240209T223000
DTSTAMP:20260512T144203
CREATED:20240111T170724Z
LAST-MODIFIED:20240111T170724Z
UID:11054-1707503400-1707517800@cffamilyconnection.org
SUMMARY:BreatheCon 2024 - Day 1
DESCRIPTION:From the Cystic Fibrosis Foundation: \n\n\n\n\n\n\nOn Feb. 9 & 10\, 2024\, the Cystic Fibrosis Foundation will host BreatheCon\, a unique event for adults with cystic fibrosis to virtually gather with one another in a welcoming\, inclusive space where you can be your authentic self. No matter if you are seeking to learn from others\, share your CF journey\, or just want to socialize; all adults with CF are welcome to attend! \n* BreatheCon sessions on Friday\, February 9th\, will be accessible in Spanish. \nView the schedule and register here.
URL:https://cffamilyconnection.org/event/breathecon-2024-day-1/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231019T180000
DTEND;TZID=America/New_York:20231019T210000
DTSTAMP:20260512T144203
CREATED:20231004T195639Z
LAST-MODIFIED:20231004T195639Z
UID:10875-1697738400-1697749200@cffamilyconnection.org
SUMMARY:Rochester's Finest 2023
DESCRIPTION:From Cystic Fibrosis Foundation Western NY Chapter: \nRochester’s Finest honorees represent the area’s most accomplished and innovative young leaders who commit to raise funds and awareness for the CF Foundation leading up to the Celebration in October. The chosen honorees exemplify leadership qualities\, are active in their communities\, and have excelled in business. Those selected are among the most prominent\, influential\, and successful young professionals in our region. \nFor complete information\, go to https://finest.cff.org/rochester
URL:https://cffamilyconnection.org/event/rochesters-finest-2023/
LOCATION:Casa Larga Vineyard\, 2287 Turk Hill Road\, Fairport\, NY\, 14450\, United States
CATEGORIES:CF Foundation,Education
ORGANIZER;CN="CFF Western NY Chapter":MAILTO:pschwarzweller@cff.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230614T180000
DTEND;TZID=America/New_York:20230614T203000
DTSTAMP:20260512T144203
CREATED:20230601T000559Z
LAST-MODIFIED:20230601T000910Z
UID:10476-1686765600-1686774600@cffamilyconnection.org
SUMMARY:CFF NextBreath 2023 Day 2
DESCRIPTION:NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website: \nNextBreath is an online two-day event for people with CF who are living with established lung disease or experiencing lung health complications\, and/or living post lung transplant\, as well as their family members and caregivers\, to find support and engage with peers who understand in an inclusive and compassionate setting. \nEach day has a specific focus. The theme for Day 2 is “[t]he second half of the journey: Navigating Life Post-Lung Transplant.” Per CFF: \nYou’ve been waiting months or years for a lung transplant and it’s finally here! But wait\, there’s even more changes to your health than you were expecting. On day two of NextBreath\, explore the holistic transformation that comes from a lung transplant including mental\, physical\, and emotional adjustments. Through a series of small group discussions\, panels\, and 1-on-1 networking opportunities\, attendees will learn about topics such as post-transplant care\, managing medications\, maintaining physical and emotional health\, and discuss strategies for living a healthy and fulfilling life post-transplant. \nCheck the NextBreath page for details about sessions and a link to registration.
URL:https://cffamilyconnection.org/event/cff-nextbreath-2023-day-2/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230613T060000
DTEND;TZID=America/New_York:20230613T203000
DTSTAMP:20260512T144203
CREATED:20230315T215640Z
LAST-MODIFIED:20230601T000109Z
UID:9803-1686636000-1686688200@cffamilyconnection.org
SUMMARY:CFF NextBreath 2023 Day 1
DESCRIPTION:NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website: \nNextBreath is an online two-day event for people with CF who are living with established lung disease or experiencing lung health complications\, and/or living post lung transplant\, as well as their family members and caregivers\, to find support and engage with peers who understand in an inclusive and compassionate setting. \nEach day has a specific focus. The theme for Day 1 is “[t]he loss of physical abilities\, the retention of resilience.” Per CFF: \nJoin others on day one of NextBreath who are dealing with the loss of lung function\, reduced capacity for physical activity\, endurance\, and struggling to live the life you want. Struggling with your lung health puts a strain on your mental health\, your relationships\, and your willpower. Through a series of small group discussions\, panels\, and 1-on-1 networking opportunities\, attendees will hear perspectives from individuals who have\, and are experiencing\, these challenges\, as well as share how they are coping and seeing hope for the future. \nCheck the NextBreath page for details about sessions and a link to registration. \n 
URL:https://cffamilyconnection.org/event/cff-nextbreath-2023-day-1/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230427T180000
DTEND;TZID=America/New_York:20230427T220000
DTSTAMP:20260512T144203
CREATED:20230403T003327Z
LAST-MODIFIED:20230403T003428Z
UID:10223-1682618400-1682632800@cffamilyconnection.org
SUMMARY:ResearchCon 2023 - Day 2
DESCRIPTION:Check our Announcement for details. \nCheck the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration. \nVea la página de registro de ResearchCon 2023 en español.
URL:https://cffamilyconnection.org/event/researchcon-2023-day-2/
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230426T180000
DTEND;TZID=America/New_York:20230426T220000
DTSTAMP:20260512T144203
CREATED:20230315T214029Z
LAST-MODIFIED:20230403T002900Z
UID:9786-1682532000-1682546400@cffamilyconnection.org
SUMMARY:ResearchCon 2023 - Day 1
DESCRIPTION:Check our Announcement for details. \nCheck the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration. \nVea la página de registro de ResearchCon 2023 en español. \n  \n 
URL:https://cffamilyconnection.org/event/researchcon-2023/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T190000
DTEND;TZID=America/New_York:20230412T201500
DTSTAMP:20260512T144203
CREATED:20230330T010115Z
LAST-MODIFIED:20230330T010115Z
UID:10211-1681326000-1681330500@cffamilyconnection.org
SUMMARY:Life Without Modulators Small Group Discussion
DESCRIPTION:An announcement from the Cystic Fibrosis Foundation: \nWhile many are celebrating the progression of CFTR modulators (Trikafta®\, Symdeko®\, Kalydeco® and Orkambi®)\, others are waiting for their “wonder drug.” To support the members of the CF community who are not benefiting from a modulator\, the CF Foundation is hosting a small group discussion to share experiences around Life Without Modulators. \nThis discussion is for adults with CF who are not eligible for or not benefiting from a CFTR modulator. \nDiscussions will be peer-led with one or two CF Foundation staff present during the conversations and can assist as needed. Please note this is not a support group facilitated by a mental health professional. \nThe Life Without Modulators discussion will take place for 75 minutes\, on Wednesday\, April 12 from 7-8:15 p.m. EST. \nClick Here to Register for Small Group Discussion \nBy registering\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. \nFor any questions\, please email Kelsey Logan (klogan@cff.org) or Gillian Mocek (gmocek@cff.org). \n 
URL:https://cffamilyconnection.org/event/life-without-modulators-small-group-discussion/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
END:VCALENDAR