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X-ORIGINAL-URL:https://cffamilyconnection.org
X-WR-CALDESC:Events for Cystic Fibrosis Family Connection
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DTSTART;TZID=America/New_York:20240210T133000
DTEND;TZID=America/New_York:20240210T181500
DTSTAMP:20260512T153118
CREATED:20240111T171106Z
LAST-MODIFIED:20240111T171106Z
UID:11059-1707571800-1707588900@cffamilyconnection.org
SUMMARY:BreatheCon 2024 - Day 2
DESCRIPTION:From the Cystic Fibrosis Foundation: \n\n\n\n\n\n\nOn Feb. 9 & 10\, 2024\, the Cystic Fibrosis Foundation will host BreatheCon\, a unique event for adults with cystic fibrosis to virtually gather with one another in a welcoming\, inclusive space where you can be your authentic self. No matter if you are seeking to learn from others\, share your CF journey\, or just want to socialize; all adults with CF are welcome to attend! \n* BreatheCon sessions on Friday\, February 9th\, will be accessible in Spanish. \nView the schedule and register here.
URL:https://cffamilyconnection.org/event/breathecon-2024-day-2/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240209T183000
DTEND;TZID=America/New_York:20240209T223000
DTSTAMP:20260512T153118
CREATED:20240111T170724Z
LAST-MODIFIED:20240111T170724Z
UID:11054-1707503400-1707517800@cffamilyconnection.org
SUMMARY:BreatheCon 2024 - Day 1
DESCRIPTION:From the Cystic Fibrosis Foundation: \n\n\n\n\n\n\nOn Feb. 9 & 10\, 2024\, the Cystic Fibrosis Foundation will host BreatheCon\, a unique event for adults with cystic fibrosis to virtually gather with one another in a welcoming\, inclusive space where you can be your authentic self. No matter if you are seeking to learn from others\, share your CF journey\, or just want to socialize; all adults with CF are welcome to attend! \n* BreatheCon sessions on Friday\, February 9th\, will be accessible in Spanish. \nView the schedule and register here.
URL:https://cffamilyconnection.org/event/breathecon-2024-day-1/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231019T180000
DTEND;TZID=America/New_York:20231019T210000
DTSTAMP:20260512T153118
CREATED:20231004T195639Z
LAST-MODIFIED:20231004T195639Z
UID:10875-1697738400-1697749200@cffamilyconnection.org
SUMMARY:Rochester's Finest 2023
DESCRIPTION:From Cystic Fibrosis Foundation Western NY Chapter: \nRochester’s Finest honorees represent the area’s most accomplished and innovative young leaders who commit to raise funds and awareness for the CF Foundation leading up to the Celebration in October. The chosen honorees exemplify leadership qualities\, are active in their communities\, and have excelled in business. Those selected are among the most prominent\, influential\, and successful young professionals in our region. \nFor complete information\, go to https://finest.cff.org/rochester
URL:https://cffamilyconnection.org/event/rochesters-finest-2023/
LOCATION:Casa Larga Vineyard\, 2287 Turk Hill Road\, Fairport\, NY\, 14450\, United States
CATEGORIES:CF Foundation,Education
ORGANIZER;CN="CFF Western NY Chapter":MAILTO:pschwarzweller@cff.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230614T180000
DTEND;TZID=America/New_York:20230614T203000
DTSTAMP:20260512T153118
CREATED:20230601T000559Z
LAST-MODIFIED:20230601T000910Z
UID:10476-1686765600-1686774600@cffamilyconnection.org
SUMMARY:CFF NextBreath 2023 Day 2
DESCRIPTION:NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website: \nNextBreath is an online two-day event for people with CF who are living with established lung disease or experiencing lung health complications\, and/or living post lung transplant\, as well as their family members and caregivers\, to find support and engage with peers who understand in an inclusive and compassionate setting. \nEach day has a specific focus. The theme for Day 2 is “[t]he second half of the journey: Navigating Life Post-Lung Transplant.” Per CFF: \nYou’ve been waiting months or years for a lung transplant and it’s finally here! But wait\, there’s even more changes to your health than you were expecting. On day two of NextBreath\, explore the holistic transformation that comes from a lung transplant including mental\, physical\, and emotional adjustments. Through a series of small group discussions\, panels\, and 1-on-1 networking opportunities\, attendees will learn about topics such as post-transplant care\, managing medications\, maintaining physical and emotional health\, and discuss strategies for living a healthy and fulfilling life post-transplant. \nCheck the NextBreath page for details about sessions and a link to registration.
URL:https://cffamilyconnection.org/event/cff-nextbreath-2023-day-2/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230613T060000
DTEND;TZID=America/New_York:20230613T203000
DTSTAMP:20260512T153118
CREATED:20230315T215640Z
LAST-MODIFIED:20230601T000109Z
UID:9803-1686636000-1686688200@cffamilyconnection.org
SUMMARY:CFF NextBreath 2023 Day 1
DESCRIPTION:NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website: \nNextBreath is an online two-day event for people with CF who are living with established lung disease or experiencing lung health complications\, and/or living post lung transplant\, as well as their family members and caregivers\, to find support and engage with peers who understand in an inclusive and compassionate setting. \nEach day has a specific focus. The theme for Day 1 is “[t]he loss of physical abilities\, the retention of resilience.” Per CFF: \nJoin others on day one of NextBreath who are dealing with the loss of lung function\, reduced capacity for physical activity\, endurance\, and struggling to live the life you want. Struggling with your lung health puts a strain on your mental health\, your relationships\, and your willpower. Through a series of small group discussions\, panels\, and 1-on-1 networking opportunities\, attendees will hear perspectives from individuals who have\, and are experiencing\, these challenges\, as well as share how they are coping and seeing hope for the future. \nCheck the NextBreath page for details about sessions and a link to registration. \n 
URL:https://cffamilyconnection.org/event/cff-nextbreath-2023-day-1/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230427T180000
DTEND;TZID=America/New_York:20230427T220000
DTSTAMP:20260512T153118
CREATED:20230403T003327Z
LAST-MODIFIED:20230403T003428Z
UID:10223-1682618400-1682632800@cffamilyconnection.org
SUMMARY:ResearchCon 2023 - Day 2
DESCRIPTION:Check our Announcement for details. \nCheck the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration. \nVea la página de registro de ResearchCon 2023 en español.
URL:https://cffamilyconnection.org/event/researchcon-2023-day-2/
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230426T180000
DTEND;TZID=America/New_York:20230426T220000
DTSTAMP:20260512T153118
CREATED:20230315T214029Z
LAST-MODIFIED:20230403T002900Z
UID:9786-1682532000-1682546400@cffamilyconnection.org
SUMMARY:ResearchCon 2023 - Day 1
DESCRIPTION:Check our Announcement for details. \nCheck the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration. \nVea la página de registro de ResearchCon 2023 en español. \n  \n 
URL:https://cffamilyconnection.org/event/researchcon-2023/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T190000
DTEND;TZID=America/New_York:20230412T201500
DTSTAMP:20260512T153118
CREATED:20230330T010115Z
LAST-MODIFIED:20230330T010115Z
UID:10211-1681326000-1681330500@cffamilyconnection.org
SUMMARY:Life Without Modulators Small Group Discussion
DESCRIPTION:An announcement from the Cystic Fibrosis Foundation: \nWhile many are celebrating the progression of CFTR modulators (Trikafta®\, Symdeko®\, Kalydeco® and Orkambi®)\, others are waiting for their “wonder drug.” To support the members of the CF community who are not benefiting from a modulator\, the CF Foundation is hosting a small group discussion to share experiences around Life Without Modulators. \nThis discussion is for adults with CF who are not eligible for or not benefiting from a CFTR modulator. \nDiscussions will be peer-led with one or two CF Foundation staff present during the conversations and can assist as needed. Please note this is not a support group facilitated by a mental health professional. \nThe Life Without Modulators discussion will take place for 75 minutes\, on Wednesday\, April 12 from 7-8:15 p.m. EST. \nClick Here to Register for Small Group Discussion \nBy registering\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. \nFor any questions\, please email Kelsey Logan (klogan@cff.org) or Gillian Mocek (gmocek@cff.org). \n 
URL:https://cffamilyconnection.org/event/life-without-modulators-small-group-discussion/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
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