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X-WR-CALNAME:Cystic Fibrosis Family Connection
X-ORIGINAL-URL:https://cffamilyconnection.org
X-WR-CALDESC:Events for Cystic Fibrosis Family Connection
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240430T180000
DTEND;TZID=America/New_York:20240430T220000
DTSTAMP:20260619T155337
CREATED:20240330T003614Z
LAST-MODIFIED:20240330T003825Z
UID:11226-1714500000-1714514400@cffamilyconnection.org
SUMMARY:ResearchCon 2024 - Day 1
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/researchcon-2024-day-1/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240411T190000
DTEND;TZID=America/New_York:20240411T210000
DTSTAMP:20260619T155337
CREATED:20240319T002344Z
LAST-MODIFIED:20240319T002357Z
UID:11199-1712862000-1712869200@cffamilyconnection.org
SUMMARY:Small Group Discussion - Body Image
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/small-group-discussion-body-image/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240306T190000
DTEND;TZID=America/New_York:20240306T210000
DTSTAMP:20260619T155337
CREATED:20240223T000745Z
LAST-MODIFIED:20240223T000745Z
UID:11120-1709751600-1709758800@cffamilyconnection.org
SUMMARY:Life Without Modulators Small Group Discussion
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/life-without-modulators-small-group-discussion-2/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240228T173000
DTEND;TZID=America/New_York:20240228T200000
DTSTAMP:20260619T155337
CREATED:20240115T224205Z
LAST-MODIFIED:20240115T224205Z
UID:11079-1709141400-1709150400@cffamilyconnection.org
SUMMARY:WNY Annual Meeting & Awards Celebration
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/wny-annual-meeting-awards-celebration/
LOCATION:Pane Vino on the Avenue\, 3400 Monroe Ave\, Rochester\, NY\, 14618\, United States
CATEGORIES:CF Foundation
ORGANIZER;CN="CFF Western NY Chapter":MAILTO:pschwarzweller@cff.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240210T133000
DTEND;TZID=America/New_York:20240210T181500
DTSTAMP:20260619T155337
CREATED:20240111T171106Z
LAST-MODIFIED:20240111T171106Z
UID:11059-1707571800-1707588900@cffamilyconnection.org
SUMMARY:BreatheCon 2024 - Day 2
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/breathecon-2024-day-2/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240209T183000
DTEND;TZID=America/New_York:20240209T223000
DTSTAMP:20260619T155337
CREATED:20240111T170724Z
LAST-MODIFIED:20240111T170724Z
UID:11054-1707503400-1707517800@cffamilyconnection.org
SUMMARY:BreatheCon 2024 - Day 1
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/breathecon-2024-day-1/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231019T180000
DTEND;TZID=America/New_York:20231019T210000
DTSTAMP:20260619T155337
CREATED:20231004T195639Z
LAST-MODIFIED:20231004T195639Z
UID:10875-1697738400-1697749200@cffamilyconnection.org
SUMMARY:Rochester's Finest 2023
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/rochesters-finest-2023/
LOCATION:Casa Larga Vineyard\, 2287 Turk Hill Road\, Fairport\, NY\, 14450\, United States
CATEGORIES:CF Foundation,Education
ORGANIZER;CN="CFF Western NY Chapter":MAILTO:pschwarzweller@cff.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230614T180000
DTEND;TZID=America/New_York:20230614T203000
DTSTAMP:20260619T155337
CREATED:20230601T000559Z
LAST-MODIFIED:20230601T000910Z
UID:10476-1686765600-1686774600@cffamilyconnection.org
SUMMARY:CFF NextBreath 2023 Day 2
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/cff-nextbreath-2023-day-2/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230613T060000
DTEND;TZID=America/New_York:20230613T203000
DTSTAMP:20260619T155337
CREATED:20230315T215640Z
LAST-MODIFIED:20230601T000109Z
UID:9803-1686636000-1686688200@cffamilyconnection.org
SUMMARY:CFF NextBreath 2023 Day 1
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/cff-nextbreath-2023-day-1/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230521T100000
DTEND;TZID=America/New_York:20230521T130000
DTSTAMP:20260619T155337
CREATED:20230315T212405Z
LAST-MODIFIED:20230315T212405Z
UID:9778-1684663200-1684674000@cffamilyconnection.org
SUMMARY:Great Strides 2023 - Rochester
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/great-strides-2023-rochester/
LOCATION:Genesee Valley Park – Roundhouse Shelter\, Moore Road\, Rochester\, NY\, 14620\, United States
CATEGORIES:CF Foundation,CFF Fund Raising
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230427T180000
DTEND;TZID=America/New_York:20230427T220000
DTSTAMP:20260619T155337
CREATED:20230403T003327Z
LAST-MODIFIED:20230403T003428Z
UID:10223-1682618400-1682632800@cffamilyconnection.org
SUMMARY:ResearchCon 2023 - Day 2
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/researchcon-2023-day-2/
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230426T180000
DTEND;TZID=America/New_York:20230426T220000
DTSTAMP:20260619T155337
CREATED:20230315T214029Z
LAST-MODIFIED:20230403T002900Z
UID:9786-1682532000-1682546400@cffamilyconnection.org
SUMMARY:ResearchCon 2023 - Day 1
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/researchcon-2023/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T190000
DTEND;TZID=America/New_York:20230412T201500
DTSTAMP:20260619T155337
CREATED:20230330T010115Z
LAST-MODIFIED:20230330T010115Z
UID:10211-1681326000-1681330500@cffamilyconnection.org
SUMMARY:Life Without Modulators Small Group Discussion
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/life-without-modulators-small-group-discussion/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221105T170000
DTEND;TZID=America/New_York:20221105T220000
DTSTAMP:20260619T155337
CREATED:20220109T202608Z
LAST-MODIFIED:20220109T202608Z
UID:5681-1667667600-1667685600@cffamilyconnection.org
SUMMARY:Breath of Life Gala
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/breath-of-life-gala/
CATEGORIES:CF Foundation,CFF Fund Raising
ORGANIZER;CN="CFF Western NY Chapter":MAILTO:pschwarzweller@cff.org
END:VEVENT
END:VCALENDAR