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X-WR-CALNAME:Cystic Fibrosis Family Connection
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X-WR-CALDESC:Events for Cystic Fibrosis Family Connection
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UID:12228-1740679200-1740690000@cffamilyconnection.org
SUMMARY:WNYCFF Rochester Annual Meeting 2025
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/wnycff-rochester-annual-meeting-2025/
LOCATION:Pane Vino on the Avenue\, 3400 Monroe Ave\, Rochester\, NY\, 14618\, United States
CATEGORIES:CF Foundation,Education
ORGANIZER;CN="CFF Western NY Chapter":MAILTO:pschwarzweller@cff.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250325T190000
DTEND;TZID=America/New_York:20250325T200000
DTSTAMP:20250114T021117Z
CREATED:20250114T021100Z
LAST-MODIFIED:20250114T021117Z
UID:12206-1742929200-1742932800@cffamilyconnection.org
SUMMARY:CF Circle - Living Longer With CF
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/cf-circle-living-longer-with-cf/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250518T100000
DTEND;TZID=America/New_York:20250518T130000
DTSTAMP:20250114T223502Z
CREATED:20250114T223502Z
LAST-MODIFIED:20250114T223502Z
UID:12226-1747562400-1747573200@cffamilyconnection.org
SUMMARY:Great Strides - Rochester 2025
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/great-strides-rochester-2025/
LOCATION:Genesee Valley Park – Roundhouse Shelter\, Moore Road\, Rochester\, NY\, 14620\, United States
CATEGORIES:CF Foundation,CFF Fund Raising
ORGANIZER;CN="CFF Western NY Chapter":MAILTO:pschwarzweller@cff.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250606T173000
DTEND;TZID=America/New_York:20250606T223000
DTSTAMP:20250408T140418Z
CREATED:20250408T140418Z
LAST-MODIFIED:20250408T140418Z
UID:12365-1749231000-1749249000@cffamilyconnection.org
SUMMARY:ResearchCon 2025
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/researchcon-2025/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250612T110000
DTEND;TZID=America/New_York:20250612T190000
DTSTAMP:20250125T025308Z
CREATED:20250125T025113Z
LAST-MODIFIED:20250125T025308Z
UID:12255-1749726000-1749754800@cffamilyconnection.org
SUMMARY:ROC 65 Roses Golf Tournament - 2025
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  If you have a loved one with CF who could benefit from this discussion\, please forward this information to them. Register for Small Group Discussion on Body Image Discussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. By registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. Please also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. For any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/roc-65-roses-golf-tournament-2025/
LOCATION:Ravenwood Golf Club\, 929 Lynaugh Rd\, Victor\, NY\, 14564\, United States
CATEGORIES:CF Foundation,CFF Fund Raising
ORGANIZER;CN="CFF Western NY Chapter":MAILTO:pschwarzweller@cff.org
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