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X-ORIGINAL-URL:https://cffamilyconnection.org
X-WR-CALDESC:Events for Cystic Fibrosis Family Connection
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DTSTART;TZID=America/New_York:20250913T080000
DTEND;TZID=America/New_York:20250913T130000
DTSTAMP:20260421T144118
CREATED:20250319T192629Z
LAST-MODIFIED:20250504T163225Z
UID:12345-1757750400-1757768400@cffamilyconnection.org
SUMMARY:Living with CF Golf Tournament 2025
DESCRIPTION:For full details\, go to our Golf for a Good Cause post. You can register online from the Golf for a Good Cause post\, or you can mail the entry form in the Living with CF Golf Brochure_2025.
URL:https://cffamilyconnection.org/event/living-with-cf-golf-tournament-2025/
LOCATION:Southern Meadows Golf Club\, 1025 Rush Scottsville Road\, Rush\, NY\, 14543\, United States
CATEGORIES:CFFC Fund Raising
ORGANIZER;CN="Cystic Fibrosis Family Connection":MAILTO:info@cffamilyconnection.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250803T100000
DTEND;TZID=America/New_York:20250803T140000
DTSTAMP:20260421T144118
CREATED:20250427T214826Z
LAST-MODIFIED:20250427T215158Z
UID:12454-1754215200-1754229600@cffamilyconnection.org
SUMMARY:CFFC Family Day 2025
DESCRIPTION:The 2025 version of CFFC Family Day will be held on Sunday\, August 3rd. We will be returning to Wickham Farms in Penfield. Trying to balance summertime demands\, we have reserved the Event Barn from 10:00AM to 2:00PM. \nAdmission is FREE for everyone registered through CFFC. By “everyone\,” we mean individuals covered by the Rochester CF Center: those living with CF\, their families\, their extended support network and caregivers. \nWe ask that you register by July 29th. For full details and registration\, check our post: Join Us for Family Day 2025
URL:https://cffamilyconnection.org/event/cffc-family-day-2025/
LOCATION:Wickham Farms\, 1315 Sweets Corners Rd\, Penfield\, NY\, 14526\, United States
CATEGORIES:CFFC,Education
ORGANIZER;CN="Cystic Fibrosis Family Connection":MAILTO:info@cffamilyconnection.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240907T083000
DTEND;TZID=America/New_York:20240907T130000
DTSTAMP:20260421T144118
CREATED:20240519T113005Z
LAST-MODIFIED:20240522T201552Z
UID:11450-1725697800-1725714000@cffamilyconnection.org
SUMMARY:Living with CF Golf Tournament 2024
DESCRIPTION:September 7\n	  @\n8:30 am\n	  –\n1:00 pm \nHappy 2024! Celebrate the end of summer\, while raising funds for CFFC programs\, by playing in the Living with CF Golf tournament. This year’s edition will be held on Saturday\, September 7th. We will once again be hosted by Southern Meadows Golf Club in Rush\, NY. Get all the details in the Living with CF Golf Brochure_2024. \nCosts have increased but we are keeping the entry fees the same ($70 per player or $250 for a foursome). To match the funds raised in prior years\, we’re looking for your help by recruiting additional players. Your entry fee can be paid by check\, PayPal or Venmo (see our Donations page for details). \nThe primary purpose of the tournament is fund raising while having fun\, but you also have the opportunity to win prizes. Low scores will earn trips to the prize table. We also have prizes for closest to the pin on two par 3 holes. And hone your accuracy so you can grab one of the 4 hole-in-one prizes. \nThe day begins at 8:30 with coffee and snacks at check-in. The shotgun start at 9:00 gets the action rolling. The event wraps up with a grilled filet lunch followed by awards. \nWant to join in the festivities? You can complete the entry form in the Living with CF Golf Brochure_2024. Or you can save the stamp and fill out the online entry form below. \nNOTE: We ask for your email and telephone number so we can provide updates or contact you to clarify your entry. CFFC does not share this information with any other organization. \n\n	Southern Meadows Golf Club\n\n1025 Rush Scottsville Road\n		\n		Rush\,\n	NY\n	14543\n	United States\n\n\n	+ Google Map \n\n					\n						\n	 \n\n\n\n\n	\n	Add to calendar	\n		\n	\n \n\n\n	Google Calendar\n\n\n	iCalendar\n\n\n	Outlook 365\n\n\n	Outlook Live\n\n\n\n\n\n\n				Family Day 2024
URL:https://cffamilyconnection.org/event/living-with-cf-golf-tournament-2024/
LOCATION:Southern Meadows Golf Club\, 1025 Rush Scottsville Road\, Rush\, NY\, 14543\, United States
CATEGORIES:CFFC,CFFC Fund Raising
ORGANIZER;CN="Cystic Fibrosis Family Connection":MAILTO:info@cffamilyconnection.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240804T130000
DTEND;TZID=America/New_York:20240804T170000
DTSTAMP:20260421T144118
CREATED:20240422T185059Z
LAST-MODIFIED:20240629T150450Z
UID:11292-1722776400-1722790800@cffamilyconnection.org
SUMMARY:Family Day 2024
DESCRIPTION:August 4\n	  @\n1:00 pm\n	  –\n5:00 pm \nCFFC is pleased to announce the return to Family Day. Please join us with your family and supporters for an afternoon connecting\, learning and having fun with our one-of-a-kind CF community. \nAdmission to Wickham Farms for CFFC Family Day is FREE to everyone associated with the Rochester NY CF Center – individuals living with CF\, their families and supporters\, and CF caregivers. Admission includes: bounce pillow\, corn pit\, lawn games\, playground\, tractor rides\, farm animals\, food and beverages\, and more! \nWe are working to extend our tradition of mixing education with family fun. We plan to set up space for one-on-one conversations with peers from our community on key CF topics. We are also inviting corporate sponsors to discuss their latest products. \nCFFC will follow CFF infection control guidelines. We will provide masks\, hand sanitizers and identification for those who have CF. We have reserved the barn for exclusive use by CFFC to provide a space away from the other visitors. \nTo help us with planning and simplify admission\, we are asking attendees to preregister. Please complete and submit the form below by Monday\, July 29th. Your email address will be used to confirm your registration and provide event updates. \n\n																							 \n\n			 \nDATE: Sunday August 4\, 2024 \nTIME: 1:00PM – 5:00PM \nORGANIZER: Cystic Fibrosis Family Connection \nCOST: FREE! \n\n	\n	Add to calendar	\n		\n	\n \n\n\n	Google Calendar\n\n\n	iCalendar\n\n\n	Outlook 365\n\n\n	Outlook Live\n\n\n\n\n\n\n				Rochester Great Strides 2024	\n\n\n	\n		Living with CF Golf Tournament 2024
URL:https://cffamilyconnection.org/event/family-day-2024/
LOCATION:Wickham Farms\, 1315 Sweets Corners Rd\, Penfield\, NY\, 14526\, United States
CATEGORIES:CFFC
ORGANIZER;CN="Cystic Fibrosis Family Connection":MAILTO:info@cffamilyconnection.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230909T083000
DTEND;TZID=America/New_York:20230909T130000
DTSTAMP:20260421T144118
CREATED:20230525T025546Z
LAST-MODIFIED:20240512T205527Z
UID:10451-1694248200-1694264400@cffamilyconnection.org
SUMMARY:CFFC Living with CF Golf Tournament 2023
DESCRIPTION:The Living with CF Golf Tournament returns to Southern Meadows Golf Club on Saturday\, September 9\, 2023.\nDetails\, including new payment options and online registration\, are presented in Announcing Living with CF Golf Tournament 2023.\nYou can also get the details and a paper entry form by downloading the CFFC Golf Brochure_2023\n  \nYou can now submit your registration electronically using the form below. Visit our Donate page for payment options.
URL:https://cffamilyconnection.org/event/cffc-living-with-cf-golf-tournament-2023/
LOCATION:Southern Meadows Golf Club\, 1025 Rush Scottsville Road\, Rush\, NY\, 14543\, United States
CATEGORIES:CFFC,CFFC Fund Raising
ORGANIZER;CN="Cystic Fibrosis Family Connection":MAILTO:info@cffamilyconnection.org
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