From Cystic Fibrosis Foundation Western NY Chapter: Rochester’s Finest honorees represent the area’s most accomplished and innovative young leaders who commit to raise funds and awareness for the CF Foundation leading up to the Celebration in October. The chosen honorees exemplify leadership qualities, are active in their communities, and have excelled in business. Those selected […]
From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with one another in a welcoming, inclusive space where you can be your authentic self. No matter if you are seeking to learn from others, share […]
From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with one another in a welcoming, inclusive space where you can be your authentic self. No matter if you are seeking to learn from others, share […]
2023 was a great year for the Cystic Fibrosis Foundation - Western New York Chapter, and now it's time to celebrate! We invite you to join us as we honor our community leaders and find out what's to come in 2024. Wednesday, February 28, 2024, 5:30pm - Pane Vino on the Avenue, Rochester Register Here
The Cystic Fibrosis Foundation has issued the following invitation to "Life Without Modulators Small Group Discussion." While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for the next highly effective treatment. To support the members of the CF community who are not benefiting from a modulator, the […]
The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image.Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other […]
The invitation from the Cystic Fibrosis Foundation:You are invited to join the 6th annual ResearchCon on April 30-May 1, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of […]
The invitation from the Cystic Fibrosis Foundation:You are invited to join the 6th annual ResearchCon on April 30-May 1, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of […]
Great Strides is the Cystic Fibrosis Foundation's largest national fundraiser that brings together the community to raise awareness and funds towards our mission of finding a cure for all those living with cystic fibrosis. Registration is open! Join us in Rochester on Sunday, May 19. Register Here
August 4 @ 1:00 pm - 5:00 pm CFFC is pleased to announce the return to Family Day. Please join us with your family and supporters for an afternoon connecting, learning and having fun with our one-of-a-kind CF community.Admission to Wickham Farms for CFFC Family Day is FREE to everyone associated with the Rochester NY […]
September 7 @ 8:30 am - 1:00 pm Happy 2024! Celebrate the end of summer, while raising funds for CFFC programs, by playing in the Living with CF Golf tournament. This year's edition will be held on Saturday, September 7th. We will once again be hosted by Southern Meadows Golf Club in Rush, NY. Get […]
From the Cystic Fibrosis Foundation: Interested in learning about the latest cystic fibrosis research and care highlights from the North American Cystic Fibrosis Conference (NACFC)? Register for our live webinar November 12 at 7 p.m. ET to hear key takeaways from this year’s conference and have an opportunity to ask the experts your questions. REGISTER […]