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X-WR-CALNAME:Cystic Fibrosis Family Connection
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X-WR-CALDESC:Events for Cystic Fibrosis Family Connection
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UID:10211-1681326000-1681330500@cffamilyconnection.org
SUMMARY:Life Without Modulators Small Group Discussion
DESCRIPTION:An announcement from the Cystic Fibrosis Foundation: \nWhile many are celebrating the progression of CFTR modulators (Trikafta®\, Symdeko®\, Kalydeco® and Orkambi®)\, others are waiting for their “wonder drug.” To support the members of the CF community who are not benefiting from a modulator\, the CF Foundation is hosting a small group discussion to share experiences around Life Without Modulators. \nThis discussion is for adults with CF who are not eligible for or not benefiting from a CFTR modulator. \nDiscussions will be peer-led with one or two CF Foundation staff present during the conversations and can assist as needed. Please note this is not a support group facilitated by a mental health professional. \nThe Life Without Modulators discussion will take place for 75 minutes\, on Wednesday\, April 12 from 7-8:15 p.m. EST. \nClick Here to Register for Small Group Discussion \nBy registering\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. \nFor any questions\, please email Kelsey Logan (klogan@cff.org) or Gillian Mocek (gmocek@cff.org). \n 
URL:https://cffamilyconnection.org/event/life-without-modulators-small-group-discussion/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
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DTSTART;TZID=America/New_York:20221105T170000
DTEND;TZID=America/New_York:20221105T220000
DTSTAMP:20260502T210545
CREATED:20220109T202608Z
LAST-MODIFIED:20220109T202608Z
UID:5681-1667667600-1667685600@cffamilyconnection.org
SUMMARY:Breath of Life Gala
DESCRIPTION:Details will be added as they become available.
URL:https://cffamilyconnection.org/event/breath-of-life-gala/
LOCATION:NY
CATEGORIES:CF Foundation,CFF Fund Raising
ORGANIZER;CN="CFF Western NY Chapter":MAILTO:pschwarzweller@cff.org
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