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X-WR-CALNAME:Cystic Fibrosis Family Connection
X-ORIGINAL-URL:https://cffamilyconnection.org
X-WR-CALDESC:Events for Cystic Fibrosis Family Connection
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DTSTART;TZID=America/New_York:20240411T190000
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SUMMARY:Small Group Discussion - Body Image
DESCRIPTION:The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image. \n\nAdults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests\, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other around their unique challenges surrounding weight fluctuations\, surgery scars\, or other physical manifestations due to CF or treatments.  \nIf you have a loved one with CF who could benefit from this discussion\, please forward this information to them. \n\nRegister for Small Group Discussion on Body Image \n\nDiscussions will be peer-led with CF Foundation staff present to assist with technology. Please note these are not support groups facilitated by a mental health professional. \nBy registering for a small group discussion\, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy. \nPlease also review the Event Conduct Guide. By registering for or attending any CF Foundation event\, you agree to follow this guidance. \nFor any questions\, please email Kelsey Logan (klogan@cff.org).
URL:https://cffamilyconnection.org/event/small-group-discussion-body-image/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
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DTSTART;TZID=America/New_York:20240430T180000
DTEND;TZID=America/New_York:20240430T220000
DTSTAMP:20260430T003313
CREATED:20240330T003614Z
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SUMMARY:ResearchCon 2024 - Day 1
DESCRIPTION:The invitation from the Cystic Fibrosis Foundation: \nYou are invited to join the 6th annual ResearchCon on April 30-May 1\, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of their loved ones and leads to feeling more connected to the CF community. \nResearchCon features information sessions\, roundtables\, and social opportunities like: \n\nSocial chat time with other parents of people with CF\nA genetics counselor\, researcher\, and community members presenting on the latest information on genetic therapies research followed by a Q&A\nA clinical trials research coordinator and community members sharing their expertise and experiences with clinical trials\n\nREGISTER HERE \nYou can check out the schedule and session options here:  ResearchCon 2024 Schedule
URL:https://cffamilyconnection.org/event/researchcon-2024-day-1/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
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