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X-WR-CALDESC:Events for Cystic Fibrosis Family Connection
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SUMMARY:ResearchCon 2024 - Day 2
DESCRIPTION:The invitation from the Cystic Fibrosis Foundation: \nYou are invited to join the 6th annual ResearchCon on April 30-May 1\, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of their loved ones and leads to feeling more connected to the CF community. \nResearchCon features information sessions\, roundtables\, and social opportunities like: \n\nSocial chat time with other parents of people with CF\nA genetics counselor\, researcher\, and community members presenting on the latest information on genetic therapies research followed by a Q&A\nA clinical trials research coordinator and community members sharing their expertise and experiences with clinical trials\n\nREGISTER HERE \nYou can check out the schedule and session options here: ResearchCon 2024 Schedule
URL:https://cffamilyconnection.org/event/researchcon-2024-day-2/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
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SUMMARY:Rochester Great Strides 2024
DESCRIPTION:Great Strides is the Cystic Fibrosis Foundation’s largest national fundraiser that brings together the community to raise awareness and funds towards our mission of finding a cure for all those living with cystic fibrosis. Registration is open! Join us in Rochester on Sunday\, May 19. \nRegister Here
URL:https://cffamilyconnection.org/event/rochester-great-strides-2024/
LOCATION:Genesee Valley Park – Roundhouse Shelter\, Moore Road\, Rochester\, NY\, 14620\, United States
CATEGORIES:CF Foundation,CFF Fund Raising
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