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X-WR-CALNAME:Cystic Fibrosis Family Connection
X-ORIGINAL-URL:https://cffamilyconnection.org
X-WR-CALDESC:Events for Cystic Fibrosis Family Connection
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DTSTART;TZID=America/New_York:20250207T180000
DTEND;TZID=America/New_York:20250207T220000
DTSTAMP:20260502T160348
CREATED:20250125T023237Z
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UID:12251-1738951200-1738965600@cffamilyconnection.org
SUMMARY:BreatheCon 2025 - Day 1
DESCRIPTION:From the Cystic Fibrosis Foundation: \nWhether you were diagnosed with cystic fibrosis at birth or recently received a diagnosis\, there’s a spot for you at BreatheCon! This two-day virtual experience offers opportunities to share stories and perspectives with people who truly “get it.” Attendees will have access to panels\, group chats\, and social events\, including a game night and karaoke. Register to join us February 7-8 to get to know and have fun with other adults living with CF!  \nSee the details of the event including registration: BreatheCon 2025
URL:https://cffamilyconnection.org/event/breathecon-2025-day-1/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250208T133000
DTEND;TZID=America/New_York:20250208T190000
DTSTAMP:20260502T160348
CREATED:20250125T023718Z
LAST-MODIFIED:20250125T023718Z
UID:12253-1739021400-1739041200@cffamilyconnection.org
SUMMARY:BreatheCon 2025 - Day 2
DESCRIPTION:From the Cystic Fibrosis Foundation: \nWhether you were diagnosed with cystic fibrosis at birth or recently received a diagnosis\, there’s a spot for you at BreatheCon! This two-day virtual experience offers opportunities to share stories and perspectives with people who truly “get it.” Attendees will have access to panels\, group chats\, and social events\, including a game night and karaoke. Register to join us February 7-8 to get to know and have fun with other adults living with CF!  \nSee the details of the event including registration: BreatheCon 2025
URL:https://cffamilyconnection.org/event/breathecon-2025-day-2/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250225T190000
DTEND;TZID=America/New_York:20250225T200000
DTSTAMP:20260502T160348
CREATED:20250114T020144Z
LAST-MODIFIED:20250114T020144Z
UID:12203-1740510000-1740513600@cffamilyconnection.org
SUMMARY:CF Circle - Sexual Health
DESCRIPTION:Description from Cystic Fibrosis Foundation:\n\nThis small group discussion is for adults with CF and offers a supportive environment to connect with others who share similar experiences. There is no set agenda in these groups\, but topics may include discussion of hormones\, incontinence and UTIs\, side effects of medication\, or menopause. Join the conversation to engage in meaningful discussions\, exchange insights\, and build connections with others in the CF community.\n\nIf you have any trouble registering or have any questions\, please contact Rachel at rhershberg@cff.org\n\nRegister\n\nLearn more about CF Circles here.
URL:https://cffamilyconnection.org/event/cf-circle-sexual-health/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250227T180000
DTEND;TZID=America/New_York:20250227T210000
DTSTAMP:20260502T160348
CREATED:20250114T224646Z
LAST-MODIFIED:20250114T224646Z
UID:12228-1740679200-1740690000@cffamilyconnection.org
SUMMARY:WNYCFF Rochester Annual Meeting 2025
DESCRIPTION:Here’s the announcement from the Western New York Chapter of the Cystic Fibrosis Foundation: \nCelebrate the moment with us at the Western New York Chapter of the Cystic Fibrosis Foundation’s Buffalo and Rochester annual meetings\, which will be held on Thursday\, February 27\, 2025 in Rochester and Thursday\, March 6\, 2025 in Buffalo.\n\nDuring this annual gathering\, we will reflect on the extraordinary achievements we’ve made as a community in 2024 and celebrate our dedicated volunteers and sponsors who supported us in our mission to cure cystic fibrosis.\n\nREGISTER\n\nFor more information\, contact Sara Nelson (snelson@cff.org)
URL:https://cffamilyconnection.org/event/wnycff-rochester-annual-meeting-2025/
LOCATION:Pane Vino on the Avenue\, 3400 Monroe Ave\, Rochester\, NY\, 14618\, United States
CATEGORIES:CF Foundation,Education
ORGANIZER;CN="CFF Western NY Chapter":MAILTO:pschwarzweller@cff.org
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