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X-WR-CALNAME:Cystic Fibrosis Family Connection
X-ORIGINAL-URL:https://cffamilyconnection.org
X-WR-CALDESC:Events for Cystic Fibrosis Family Connection
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UID:12365-1749231000-1749249000@cffamilyconnection.org
SUMMARY:ResearchCon 2025
DESCRIPTION:The announcement from the Cystic Fibrosis Foundation: \nJoin us at ResearchCon May 6! Everyone in the cystic fibrosis community is invited to this one-day\, virtual event to discuss the latest in CF-related science\, research\, clinical care\, and the lived experience alongside others living with and studying the disease. \nThis event will cover critical topics directly shaped by your feedback\, including gastrointestinal complications\, advancements in CF-related nutrition\, common mental health challenges\, and key differences between Trikafta and Alyftrek. \nPlus\, hear leading CF clinicians and researchers discussing topics like prenatal Trikafta use in CF carriers\, current clinical trials\, and the current state of gene therapy research. \nDuring the event\, you will also have the opportunity to ask deeper questions and interact directly with leading clinicians and researchers shaping the future of CF treatment and care. We can’t wait to see you there! \nRegister for ResearchCon \nThe registration page contains descriptions of the sessions and a detailed schedule.
URL:https://cffamilyconnection.org/event/researchcon-2025/
LOCATION:On-line Webinar
CATEGORIES:CF Foundation,Education
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DTSTART;TZID=America/New_York:20250612T110000
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SUMMARY:ROC 65 Roses Golf Tournament - 2025
DESCRIPTION:From the Western NY Chapter of the Cystic Fibrosis Foundation: \nOn behalf of Michael Sellars\, President of ROC CF Awareness\, Inc\, and Volunteer Leadership Chair for the inaugural Rochester 65 Roses Golf Tournament\, I am thrilled to announce that the Cystic Fibrosis Foundation in Rochester\, NY\, is adding a Golf Tournament to our events calendar!  Past participation in Michael’s ROC CF Awareness tournament is greatly appreciated and we are hopeful support of the CF community will continue with your involvement with this new event.  \nSome details regarding the ROC 65 Roses Golf Tournament: \n                Date:                     Thursday\, June 12\, 2025 \n                Time:                    11:00am Registration and Lunch \n                                                Noon – Shotgun start \n                Location:            Ravenwood Golf Club\, Victor\, NY \nTo learn more about the event\, sponsorships and to register\, visit the website: https://events.cff.org/ROC65RosesGolf \nIf you have any questions\, please give me a call at (585) 924-0319. \nWe hope to see you at Ravenwood on June 12th! \nUntil It’s Done! \nPatty Schwarzweller
URL:https://cffamilyconnection.org/event/roc-65-roses-golf-tournament-2025/
LOCATION:Ravenwood Golf Club\, 929 Lynaugh Rd\, Victor\, NY\, 14564\, United States
CATEGORIES:CF Foundation,CFF Fund Raising
ORGANIZER;CN="CFF Western NY Chapter":MAILTO:pschwarzweller@cff.org
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