The CF Foundation is looking to shorten the survey distributed by CF centers after clinic visits. Here’s their message:

Topic: Experience of Care Survey

Opportunity: 5 Minute Survey

Respond by: Friday, October 27

We are seeking feedback to help shorten the Patient and Family Experience of Care Survey. This survey is deployed at 152 CF clinics across the US.

This anonymous survey is used by CF clinics to receive feedback from patients and family members about the care they received at their clinic. It is sent to patients or parent/caregivers after clinic visits at most twice a year and creates continuous data collection so the CF healthcare team can see areas in which they excel and areas in need of improvement.

Currently the survey takes respondents approximately 20 minutes to complete. We would like to reduce the number of questions on the survey to make the survey less burdensome for respondents. Input from the CF community is essential to determine which questions may not be as relevant to you or your child’s care and could be removed from the survey.

To help us improve this survey, please take the survey here.

If you would like to reference the complete Patient and Family Experience of Care Survey, please click 2015 NACFC experience_CK.

If you have any questions about this project please contact us at [email protected].

Thank you,

Karen Homa, PhD, Improvement Specialist

The improvement survey is pretty straight forward and should take just a few minutes to complete. It’s an easy way to become engaged in the management of your CF care. We strongly encourage you to help CFF in this endeavor.