References to help patients and their families find financial resources to help with the costs associated with CF.
Living with CF
Just Breathe Foundation – Their mission statement: “Our mission is to make the lives of those battling Cystic Fibrosis more manageable. We are here to provide medical financial assistance to CF patients and their families in the Rochester area. We strive to improve the quality of life and to inspire others to show their support for the individuals and their families who struggle with this debilitating disease.”
Breathe for Bea Foundation – Their mission statement: “The mission of the Breathe for Bea Foundation is to help individuals with Cystic Fibrosis, as well as families who have a loved one with CF to care for, fight this disease by providing financial aid to help alleviate the burden of medical costs that come with treating CF, scholarships to help those with CF achieve their dreams of a higher education, hospital care packages, lung transplant aid, and through other efforts. By providing this assistance, it is our hope that we can lessen some of the stresses that can go along with living, and caring for someone, with Cystic Fibrosis.”
Cystic Fibrosis Patient Assistance Foundation – Cystic Fibrosis Patient Assistance Foundation (CFPAF) is a non-profit organization that helps people with CF afford the medications and devices they need to manage complications of their disease.
Cystic Fibrosis HealthWell Foundation – The HealthWell Foundation provides financial assistance to eligible individuals to cover coinsurance, copayments, health care premiums and deductibles for certain medications and therapies. This link goes to their page that deals specifically with Cystic Fibrosis.
Tx Grants – While the cost of transplantation is typically covered by most insurance companies, travel and relocation costs are typically absorbed by the patient’s families. The BEF Lung Transplant Grant Program is one way the Foundation works to give back to people with CF in the here and now, by helping families pay for the expenses that are not covered by their insurance.
United Health Care Children’s Foundation – The UnitedHealthcare Children’s Foundation is a 501(c)(3) non-profit charity dedicated to facilitating access to medical-related services that have the potential to significantly enhance either the clinical condition or the quality of life of the child and that are not fully covered by the available commercial health benefit plan.
Recreation Grants – Cystic Fibrosis Lifestyle Foundation offers Recreation Grants up to $500 provide funds that may be used for activities to help physical as well as social and emotional health. The applications may include requests for up to $500 additional financing for mentors to facilitate the recreation program. There is also an option for up to $500 to include a peer in the program.
Make-A-Wish – Make-A-Wish® grants the wish of a child diagnosed with a life-threatening medical condition in the United States and its territories, on average, every 38 minutes. This link takes you to the “Refer a Child” page where an online request can be submitted.
Financial Assistance for Those with Cystic Fibrosis – site hosted by about.com with guides for finding financial help
A Guide to Health Insurance and Social Security Benefits for People with CF – CFRI has distributed a guide authored by Beth Sufian, developed with Gilead Sciences, Inc., to assist people with CF, their families, and healthcare providers in identifying potential health insurance policies offered by an employer, and government programs such as Social Security benefits, Medicaid, Medicare, and state-government programs.
The Health Care Law and You – An explanation of the various components of the Affordable Care Act (including full text of the law) is provided on the HealthCare.gov site published by the US Department of Health & Human Services.
Health Care Reform Update – Consumer Reports published a report which deals with the major components of the Affordable Care Act broken down by their effective dates.
Scholarships for people living with CF are available through a couple of locally based organizations. These scholarships honor young adults who received care through the Rochester CF center.
Andrew W. Eve Memorial Scholarship – To honor Drew’s career interests, this scholarship fund was established to encourage CF patients to pursue education in fields associated with public safety. CFFC acts as fiscal agent for this scholarship fund.
Erin Marie Masling Scholarship – Serving the Rochester region, the Community Foundation offers this scholarship to encourage students who have the potential and desire to pursue life despite the effects of an ongoing medical condition or illness. Preference may be given to students with cystic fibrosis. (This link takes you to a search page, the Erin Marie Masling Scholarship is on the second page of the list.)
Additional scholarship opportunities are available through national organizations.
CFRI Scholarship Information – This site, maintained by Cystic Fibrosis Research, Inc., lists multiple scholarship offers.
Alternate path – This page on the CFFC site provides an alternative for accessing multiple scholarship sites.