A lot has been written about cystic fibrosis; however, it is important to read the most current sources. There has been a dramatic increase in the knowledge about, and treatments of, CF; therefore, older references may be misleading.
Cystic Fibrosis Foundation – The Cystic Fibrosis Foundation (CFF) is the premier source of CF information. Their Web site has comprehensive information on every aspect of cystic fibrosis. The CFF has produced an animated video which provides a clear basic explanation of CF. This video can be a good introduction to families and friends of all ages. Check out the video by clicking here.
Know-Your-CFTR-Mutations – CFF produced a single sheet, two-sided flyer that provides a quick summary of the classes of CF mutations, the physiology of each class and the treatments that have been developed to address the defect. This link will open a PDF version of the flyer which you can print or download.
Cystic Fibrosis Canada – Cystic Fibrosis Canada is is comparable to CFF for the CF community north of the US border. Of particular note is an e-learning module added to their site in September 2017. The Cystic Fibrosis eLearning Module provides a comprehensive overview of CF genetics, symptoms and treatments.
Other authoritative sources include:
- National Heart, Lung and Blood Institute – a component of the National Institutes of Health
- American Lung Association
- National Human Genome Research Institute
- Cystic Fibrosis
Boomer Esiason Foundation – What is CF? section – Information on causes, symptoms, diagnosis and treatment.
CF Learning Center – Cystic Fibrosis Learning Center was launched in 2008 to fill a unique educational gap specific to this rare but serious condition—the critical need for team-based education to include CF physician specialists, allied healthcare professionals, patients, family members, and other caregivers.
Wikipedia – For fans of contributor sources, Wikipedia has an extensive CF entry. Note, although Wikipedia has a comprehensive review process, the content is contributed by volunteers.